Hello. I was first diagnosed with endometriosis when I was 19. I struggled with the pain for two years before being diagnosed. I have been truly blessed with an amazing doctor that I believe in and who believes in me too. I have had five surgeries since my diagnosis. I have good days but more bad days. I have tried to make the most of it and not let it ruin my life.
Over the years I have missed out on a lot because the pain was more than I could handle. There are still days that the pain is intense but I fight through it so I can continue to live my life. Recently, I have also been diagnosed with a rare disease called idiopathic hypersomnia.
Like me, I’m sure you’re saying, “what the heck is that?!” I have been researching it and it is a neurological disorder that causes extreme daytime sleepiness among many other symptoms. It’s rare and has little public awareness. There is currently no FDA approved treatment for it. It’s lifelong disease with no cure…as of yet! My goal is to make the world aware of it. I just need FLAGC to designate a colored ribbon to this disease…any suggestions?
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.