I’m grappling with mixed connective tissue disease and lupus. This illness has affected my body in numerous ways. My lungs are damaged, there’s numbness in my extremities, pain, severe dizziness, vertigo, and a constant feeling of sickness, among other symptoms. It all began in 2021 with pneumonia, then progressed to numbness, a rapid heart rate, difficulty breathing, and more. It was, and still is, a terrible experience for me.
There are many times when I’m unable to drive, shower, or cook – I feel incapacitated and alone. I cry, then I try to muster a smile. I was diagnosed just six months ago, so I’m still fighting. I refuse to let this illness defeat me. Treatment hasn’t been fully established yet because I’m transitioning to better doctors for assistance.
I’ve never been this ill before, and I’m navigating it all alone. I lack a support network of family or friends, making it incredibly challenging to battle this debilitating illness on my own. Nonetheless, I must remain strong for myself. Hopefully, with new doctors, I can finally receive the help I need. I’m also actively seeking out support groups to join.
Angela
CA
Submitted 03/31/2024
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
My heart goes out to you!
I am sorry you feel so alone.
I will keep you in my prayers. I will pray for a team of doctors that will show compassion and give you the best care. I will also be praying about you being heald.
You will have much support from this wonderful site. Please reach out any time! This is a very tough journey, but you’ve got this girl!