I am a 49 year old wife, mother, grandmother. I have been living with Asthma, Emphysema, bronchiectasis and now stage 4 COPD for over 35 years. I am on the waiting list for a double lung transplant at Brigham and Women’s hospital in Boston, Mass. I am living with oxygen now which limits everything I do. I will live on oxygen until I get my transplant, and my COPD is declining a little bit every day. If I don’t get my transplant then COPD will eventually kill me. I pray every day my call will come in. I have known people who didn’t make it for their call. Being short of breath makes it hard to do every day things like house work, playing with my kids when they were little and now my granddaughter. I sit on the side lines and watch everyone else having fun. We have had to stop camping, I can no longer go with the amount of oxygen that I am on. My granddaughter keeps asking me when we can go camping and it breaks my heart. I feel like I am just here, not living, sometimes. It makes me sad to think of everyone else moving on with their life and I am just waiting and waiting. I’m supposed to stay away from sick people, smokers and this is hard to do. I have to stay as active as I can, but how do you stay away from all of that. I feel like I have been fighting like a girl for years and I will keep fighting until I get my transplant and after. I will not give up and I will keep pushing.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.