I have been a single mom for thirty years.  The dad would show up in the picture from time to time. My younger year’s started out as a struggle anyway. When I was 37 my mother passed away from Ovarian Cancer, she was only 60. It was only then that …

I was finally diagnosed with endometriosis about 3 years ago. By then it was very severe. I had taken many trips to my general practitioners office. I was sent home with the misdiagnosis of IBS (irritable bowel syndrome). Things kept getting worse. I knew inside there was something more, something …

Dear World, My name is Maddison Parker, I am 9 years old, and I have Ehlers-Danlos Syndrome. I want the world to understand Ehlers-Danlos Syndrome, so am sending this email out. I have some questions for you all! I would like to know why no-one cares about Ehlers-Danlos Syndrome? May was Ehlers-Danlos …

This is actually about my 8 year old daughter. Two and half years ago we found out that she had chiari malformation, along with other health problems. On June 28, 2010, she had decompression surgery. Since then, we have had quite the struggle dealing with everything that has come from …

My medical journey started at a young age. I learned only just recently how the pieces of my puzzle fit together. My mother was diagnosed with breast cancer for the first time in her 50’s. I decided I would push for an early mammogram, never thinking that I would have …

 My story is a real life horror story. My name is Karen, and I’ve been living with severe Crohn’s disease for 35 years. I have been allergic to all the medications that are used for the treatment of this horrible disease.  I was first diagnosed with Crohn’s when I was a mere …

My name is Phyllis K from Lincoln Delaware and originally from NYC. I have had heart disease for 35 years. I have had 3 heart surgeries to replace my tricuspid valve. In 2000, I was diagnosed with Atrial Fibulation and  am now on blood thinners. I had a brain bleed …

My name is Alexa. At the young age of 17, I was a married and a mom of a little boy. I did not expect to become pregnant again so soon after my first pregnancy. The second time around, I was so sick. I soon got to be 87 lbs. …

Time after time when I’ve told someone my life story (or at least the crappy parts) they told me I was “strong.” I never understood that word as pertaining to me. I looked at the world around me and the people that I considered strong. They were true fighter’s; the people who …

My name is Teri. I’m a 38 year old married mother of  six. I have four children of my own and two stepchildren. I had an amazing life; I was a hair stylist by day and a mommy by night. I married the love of my life just nine short …