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Ashley’s Daughter’s Story (Chiari Malformation)

Ashley's Story (Chiari Malformation) This is actually about my 8 year old daughter.

Two and half years ago we found out that she had chiari malformation, along with other health problems.

On June 28, 2010, she had decompression surgery. Since then, we have had quite the struggle dealing with everything that has come from the surgery.

She will have a long life ahead of her, but she is a very strong girl.

She definitely fights like a girl and I love her very much.

She is my hero.

Ashley
Indiana
Submitted 10-10-2012

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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2 comments

  1. My name is Kat and I am 34 years old. I found out I had Chiari Malformation Type 1 following a car accident on 12/31/12. I had no symptoms prior to the accident. I began to have tingling, numbness and pain in my arms and legs as well as neck pain and back pain. Since I was having all this pain throughout my entire body my chiropractor sent me in for an MRI which is when my Chiari was found; I have multiple syrinx as well. I then was referred to an amazing neurosurgeon. She did a CSF flow study which showed I was not getting proper flow of cerebral spinal fluid. I underwent decompression surgery on 5/8/2013 and I am now 5 and a half weeks post op. I continue to have my good days and my bad days despite the multiple muscle relaxers and pain pills. My hope is that I will be able to work again soon as I have a family to take care of. My husband is now working a full time job and a part time job and is gone all the time. Hopefully I can get back to work so that life can get back to normal for my two little girls. I am finding that I will have a longer road to recovery than I expected. God willing I will push through it. This website gives me some hope as I have read other stories of people with this condition. Thanks to all who have posted out here. It is great to read positive stories. 🙂

  2. Hi my name is Kandi…when I was 32 I found out I had Chiari Type II, and it had progressed to the point thatiI was becoming paralyzed. They did decompression surgery, and corrected other issues I had going on that I wasn’t aware of it until then. I have been a pharmacist since 1998, and my surgery was in Jan of 2006, and I started back to work right after Thanksgiving of the same year. My neck is fused due to some issues, but I am not paralyzed in any way. God is great! Hang in there sweetie, you can do anything…reach for the stars, and remember, we can do anything if we put our mind to it!!

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