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Power Stories - SMA Syndrome

Remeka’s Story (SMA Syndrome)

Sometime this year in July of 2016, I was diagnosed with SMA syndrome. After about 9 months to a year, or possibly longer, I finally had enough of feeling so sick and nauseated from the time I woke up til the time I went to sleep, vomiting here and there, dry heaving more …

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Karen’s Story (SMA Syndrome)

So, seven years ago, I had lap band. I will not deny that, since then, I have still battled anorexia and bulimia. I have maintained the same weight for six years, though I can also say that, for the last three to four years, I’ve experienced this excruciating abdominal pain, which I thought …

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Katie’s Story (SMA Syndrome)

Hi, my name is Katie, and I am 15 years old. I’ve been having stomach problems for over a year now, and every time my parents would take me to the doctor’s, they said it was a virus. My parents would take me to the doctor’s often. In November, they took …

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Abbey’s Story (SMA Syndrome)

This is coming from a 16-year-old. (: God Bless. (: Whenever I was younger, I would always get sick. Stomach aches, getting sick to my stomach, etc. I weighed 75 pounds for the longest time. Me and my parents both just thought it was just a little virus, always going …

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Alisha’s Story (SMA Syndrome)

Hi, my name is Alisha, and I am 23 years old. I was diagnosed with SMA about 4 months ago. I have had problems with my stomach for as long as I can remember. I was constantly going to the emergency room, at least once a month, throughout my teenage years, usually …

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Tonya’s Story (SMA Syndrome)

My Story: Surviving SMA Syndrome Hi, my name is Tonya Valleau, I’m 21 and was diagnosed with SMA syndrome earlier this year. I’d like to share my journey with you all. Around mid August of 2012 marked the very first time I started getting sick. It was initially a morning sickness, …

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