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Katie’s Story (SMA Syndrome)

Katie's Story SMASHi, my name is Katie, and I am 15 years old. I’ve been having stomach problems for over a year now, and every time my parents would take me to the doctor’s, they said it was a virus. My parents would take me to the doctor’s often. In November, they took me back, and I weighed 113 pounds. In December, I still had the pains.

In January, 2 months had passed since I’d been to the doctor’s, and I finally went back. They said I lost 12 pounds in 2 months, so I got scared. My doctor contacted my local hospital and wanted an Upper GI and a sonogram, so I went the next day for testing, and later that day, after my tests were done, they sent me home. On my way home, my doctor called my mom and said I needed to come back to the hospital. So I went back, and the 3rd day I was in the hospital, they said I had Superior Mesenteric Artery Syndrome. I had no idea what that was, so my doctors told me and said that is why I’ve been having stomach problems for so long. They also said it’s really rare, and if I didn’t get it treated, I would’ve died.

The 4th day in the hospital, I had an NG tube placed in me to help me gain some weight back. I’ve been out of the hospital for 2 weeks now, and I’ve gained 8 pounds since then. I was so happy they found out what was wrong with me.

Katie
United States
Submitted 02/21/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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2 comments

  1. I am wondering what is the treatment for SMAS? I have never heard of this.

  2. Hi Katie. I’m also 15. I was diagnosed in November of 2013 with SMAS. I was rushed to the Children’s hospital in my area and was rushed into surgery for my placement of a NG tube. I was 75 pounds before, and when I was in there, I had weighed around 54. I was in the hospital for two weeks. After I went home I was still on a Ensure and all liquid diet. I got my tube out on December 23rd of 2013. Since then I have had 2 colonoscopys, and 6 upper GI’s done. Right now I weigh around 85-87 pounds. You can do this! Don’t let SMAS control your own life. Fight your own fight. You got this. Prayers for you in this tough time.
    Abbey

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