Hi, my name is Sharon. I am a mom. First, let me say I admire all of the girls that have shared their story! My daughter, Kristina, is 20 years old and has been vomiting multiple times per day since February 26th. This happens every time she eats, not to mention the severe abdominal pain she struggles with. We have been to the ER, seen several gastrointestinal doctors, had an endoscopy, and she was told her throat was irritated (no joke, she’s been vomiting every day for 3 weeks).She was told to take pantoprazole and come back in a month.
She finally had a CT scan with contrast which was abnormal, and there were signs of Nutcracker Syndrome and SMAS. They said if the patient was symptomatic of these, an Upper GI should be done. She had an Upper GI, and apparently the person didn’t know how to do it because after a surgeon reviewed it, he said the images were poor quality, and he couldn’t conclude whether or not my daughter has this rare illness!
At that time, we decided to seek a second opinion. April 9th, we went to Duke University Medical Center in North Carolina to seek another GI doctor’s opinion. My daughter was scheduled for an Upper GI on April 16th. We have received the results from that and were told it was normal. Although it took the barium a lengthy time to go through, it was within normal limits. So, that still leaves us not knowing if Kristina has this or not! The doctor’s plan is to put her on a low dose anti-depressant. Not for depression, but to help with pain, nausea, and vomiting.
If anyone has any advice they can offer on this process, that would be great. Or if anyone has had both Nutcracker Phenomenon and Superior Mesenteric Artery Syndrome, we appreciate anything you can share. Is there another test option that is more specific? Has anyone been on an anti-depressant for this? This is so frustrating and heartbreaking, because I see her throwing up 15-20 times after she eats, and I can’t do anything to help her. Keep in mind, she has been vomiting every day, even if she just eats applesauce. She can’t work because she has to go all day without eating or drinking. She has lost 10+ lbs since Feb 26th. Apparently, something is getting through because while she feels dehydrated, she isn’t severely dehydrated. I don’t understand how a CT Scan can be so abnormal and all other tests be normal.
Thank you so much.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.