When you are first diagnosed with Endometriosis it’s hard to understand exactly what’s going on in our bodies but even harder is when you try to explain it to someone else. You can give them a list of symptoms – painful periods, Pain with bowel movements or urination, Excessive bleeding, the list could go …
Read More »Fear
I had an incredible dream early this morning. My dreams are typically interesting, vivid and in color but on a rare occasion I’ll experience a dream that I know I’ll carry with me for the rest of my life. This particular dream was about fear. I wasn’t running from monsters, …
Read More »”Living” with Endometriosis
Before you go running for the antibacterial wipes I just want to let you know that I’m not contagious. What I have is not catching. What I’m about to relay will not travel through your computer’s innards as a deadly Trojan virus or spread through the air like an uncovered …
Read More »Making it mean something
Hello my fellow fighters! Lately I have been thinking a lot about the journey my sickness has taken me and my family on, and how I can make something good out of it… Lemonade out of lemons (with a whole lot of added sugar, hehe), as one would say. For …
Read More »I’m Dangerous
Those of us fighting Ankylosing Spondylitis or other illnesses know that every day is a test of our courage and strength. We question if today will be the day when we find a cure, our energy will be restored, or even if we will find a bit of relief for …
Read More »Does it Ever Really Go Away?
In February 2010, I was diagnosed with Stage 4 Hodgkin’s Lymphoma. In September 2010, I was declared in remission. In December 2010, I was diagnosed with thyroid cancer and was told I would have to have the other half of my thyroid removed. In February 2011, I had it removed, and was told that it …
Read More »A New Year, A New Hope for a Cure.
I want to talk about the battle that you go through and the hard decisions you have to make when you are living with Endometriosis. As we face a new year my resolutions are simple. Take care of myself, fight with all I have against this disease and pray for a …
Read More »Cookies, Cakes and Endo, OH MY! Surviving the Holidays
It’s that time of the year! The holidays! As I type and I was thinking of all you wonderful ladies out there. I think this time of the year is wonderful. It’s one of my favorite times but it can also be one of the hardest. You get busy and …
Read More »Don’t Judge a Book by It’s Cover
I have heard a lot of comments throughout my 19 years of living with a Congenital Heart Defect and life threatening lung disease called Pulmonary Hypertension. Many of which have had to do with my scar or the way my voice sounds. A few times in elementary and middle school; …
Read More »The Increase of Fibromyalgia/CFS in Young People
Is it just me, or are more and more young people getting diagnosed with Fibromyalgia and ME/CFS?? Both have been stereotyped for so long as being illnesses that only afflict older people, but as someone who is active on twitter, I’m finding so many teens that are already diagnosed with …
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