Hi, I am a stage 4 endometriosis survivor. As a young lady, I always suffered from heavy menstrual pain and heavy bleeding. I was told that we, meaning females, have to go through this as a part of life. I used to joke that if I ever get to heaven, …
Read More »I Am A Spoonie! Are You?
Hello Lovies! I’m sure most of us can agree that explaining to others just how much our illnesses can impact our lives can be a difficult task. So we’ll be discussing how to make it a bit easier for both sides. In effort to promote understanding; I’d like to shed …
Read More »Donna’s Story (Breast cancer)
I was originally diagnosed in 2008 with breast cancer, which required a lumpectomy and radiation consult. Ultimately, radiation was not recommended. In 2010, I had breast cancer again, and not far from my original surgery. I made the decision to have a bilateral mastectomy with reconstruction, greatly reducing my reoccurrence …
Read More »Invisible Scars
I have many visible scars from various diagnostic procedures over time. I have a scar on my ribcage from my chest drain, a scar slightly under my arm pit, and a scar just underneath my right breast, from my Hodgkin’s biopsy. I also have scars on my arms from cannulas; …
Read More »Trouble Sleeping? Try These Tips
The average adult needs 7 to 9 hours of sleep each night. However, many women are not getting a good night’s rest. Some sleep problems affect women more or differently from men including: Insomnia – More than 1 in 4 women in the United States experience insomnia, the inability to …
Read More »Barbara’s Story (Metastatic Breast Cancer)
On April 15, 2015 I went in for surgery for a tumor on my femur bone. After surgery, my family was informed that the tumor was cancer. Shockingly, they told me it was breast cancer that had spread to my bones. Metastatic breast cancer. I have had mammograms since I …
Read More »Barbie’s Story (Congenital Heart Defect, Klippel Fiel Syndrome, Heart and Respiratory Failure)
My battles haven’t ended and they won’t. I was born with a heart condition called tricuspid atresia. Additionally, I have scoliosis and was finally diagnosed with Klippel–Feil syndrome (KFS) 8 years ago. The KFS gives me a migraine every day and after multiple surgeries, I can no longer move my …
Read More »Where Does It Hurt?
Many people who suffer from not only ankylosing spondylitis, but also other autoimmune disorders are familiar with these four words. The problem with the question is that there is no simple answer. For me, my symptoms can change daily. For example, yesterday I couldn’t turn my neck, but today my …
Read More »Sara’s Story (Stage 3 Breast Cancer)
In 2007, I found a lump and went in and had a biopsy done. It came back as benign. I’ve been getting mammograms nearly every year since my late 20’s /early 30’s because of family history. So, in 2016, I went in October for my annual mammogram and there was …
Read More »Laura’s Story (Breast Cancer – Invasive Ductal Carcinoma)
My story began like most; I found a lump in my left breast. Like so many women and even men, I tried to ignore it like it would go away, praying it would go away. On Father’s Day of 2011, I finally got the courage up to show my sister, …
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