Survivor Stories & Information

I am 28 years old, and to the world, I look perfectly healthy. Except for some very scary scars, you would never know how much my body has endured. At 16, I was diagnosed with juvenile rheumatoid arthritis, after the doctors first told me I had lupus. Not long after, I …

I have fought endometriosis for the last twenty years. I developed it when I was 13, and was diagnosed with it when I was 18. The time in between that was a nightmare. The doctors would tell my mum it was all in my head or that it was ‘bad …

Hi, my name is Ayla. I am 22 years old. It all started when I was 15. I started having mild pain and would always feel sick and my period would also last 2 weeks or longer. I was never regular, either. It was stressful. I always felt I needed …

When I was 17, I was diagnosed with severe endometriosis. I  was told that because of the severity of this, I would most likely never be able to conceive a child. While I was being treated for this nasty thing called endometriosis, I was very sad. Mainly because every girls …

“Oh, my friend, it’s not what they take away from you that counts – it’s what you do with what you have left.” – Hubert Humphrey. It all started officially in 2006 on St Patty’s Day. That was the day of my first surgery to confirm that I had endometriosis. …

Reading the endometriosis stories have brought back so many memories and realizations. Looking back, I have probably had endometriosis since I started menstruating. I don’t remember even one month without being doubled over in pain or embarrassing mishaps! For four years, throughout high school, various doctors told me it was …

Lets see, it all started when I was 8 years old. I remember the day just like it happened yesterday. This was when I started my period for the first time. I just remember being curled up in a ball and crying because the pain was so bad. Throughout the …

I found out I had endometriosis when I was 20 years old. I was having problems with ovarian cysts bursting so they did my first laparoscopy and they found the endometriosis. I was then put on various different birth controls to help stop the cysts and yet the endometriosis was …

My name is Charly and I’m 24-years-old. I was diagnosed with endometriosis at the age of 16 after my lap sugery and was told I would never have kids, not something that most 16-year-olds hear. Well, after that I was mostly pain-free for 6 months.  I tried 4 different types …

It started after 8th grade (13 years old or around there). My stomach was always hurting. My periods started in 2004 so not long after that I started getting all this pain and nausea. I went to my family Dr and she did some tests and thought it was a …