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Evelyn’s Story (Endometriosis)

Endometriosis Ribbion When I was 17, I was diagnosed with severe endometriosis. I  was told that because of the severity of this, I would most likely never be able to conceive a child. While I was being treated for this nasty thing called endometriosis, I was very sad. Mainly because every girls dream is to be able to have a child. I was put on birth control to help regulate periods, and maybe help with cramps and so on. Nothing was working. My pain was so severe that it was hard to function on a daily basis. When I would have my period they would be extremely heavy and painful.

I was on my way to a doctor visit to have an ultra sound on my ovaries. They wanted to look at a cyst and make sure it had not ruptured. In the meantime, the nurse asked if there was any chance I could be pregnant. I told her that I had been informed that it would be almost impossible for me to get pregnant. Then she told me to just wait a minute and the doctor would be in shortly. I had not even thought about being pregnant because I had  no missed periods to my knowledge. When the doctor came in, he confirmed that they were seeing a baby. I was as shocked as I could be, needless to say! I was three months when I found out.  Later in my pregnancy, the pain subsided and almost disappeared.

The day I went in to have my son, who is now 15, I had to have a scheduled c-section. Up until the day I turned 21, I had my period every 4 days. The day I had my son, my endometriosis came back full force. I had laparoscopic surgeries to try and remove some of it. I tried many different medicines to help, but nothing helped. When I turned 21, I had to have a complete hysterectomy, which meant there would be no chance ever  for me to have any more children. I was blessed with the one they told me I would never be able to have to begin with.  I went and had my complete hysterectomy. They took everything. When I woke up, I was sent into instant menopause, which at 21 was not a joy. But I dealt with it, and there was no more pain for some time. They got it all and told me I would be pain free.

I’m 34 now, and over the years I have had a total of 3 laparoscopic surgeries. There have been a couple areas that had to be biopsied because of pre-cancerous cells on my vaginal wall. Just a month ago, I had that taken care of. Last week, I went in and had a massive amount of adhesions removed. The doctors were able to use a new solution to put on the inside of the adhesions, which should  prevent them from coming back. My doctor removed everything that was potentially cancer and now I  will just go back every 6 months for check ups. Then I can await the day when I have a normal pap.

Submitted 04-10-2012

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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    I had the same thing happen, and all is good now, went on estergen had hot flashes ,and wow came close to having cancer, i have cancer of the colon in remission and thank god i am still alive, my prayers go to you , always think positive , have faith , it all works well in the mind, becAUSE I SAY MIND OVER MATTER, love ya sis ,you will be ok,

  2. Nicole

    Oh my goodness! I am the same age and I have been going thru the same thing for almost 2 years now. I have had 3 laparoscopic surgeries as well but I still have my right ovary and right fallopian tube. My doctor didn’t want to put me into menopause and i’m thankful for that. But during this time of pain, i’ve had doctors make me feel that I was lying about it and just trying to get narcotics. I felt so alone thru this because nobody I know has this problem. but reading your story and the stories of others that have endometriosis help me and prove that i’m not crazy and that i’m not alone so thank you and thank God you were able to have 1 child to love and care for and he the same for you. I have 5 children, 1 daughter and 2 sets of twin boys. I’m very grateful that I was able to have children before any of this started. God bless and take care.

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