Survivor Stories & Information

Since I got my first period at age 13, I knew something was wrong. The pain during my period was excruciating, and no amount of ibuprofen would touch that pain. I was one of those people laying in the nurse’s office at school with a heating pad attached to my …

Six and a half years, six and a half hell filled years of ovarian cysts, or so we thought that was all. I can count on my fingers and my toes how many hospital visits there have been in those years. All I know is that I am crazy in …

Hi, I’m seventeen years old and have been knowingly living with endometrosis for four years now. I have had multiple medical problems in my life, from ACL reconstruction to patching a hole in my heart. However, unlike those medical problems, this disease makes me struggle every single day. I hate …

I was diagnosed with stage 2 endometriosis when I was 15 years old. I have gone through so much in my battle against endo. Now I’m 18, and since my diagnosis I’ve had three surgeries in three years. I have taken multiple birth control pills, and the Lupron shot. The …

I was sickly as a child, but could get away with missing months of school at a time since my dad was my principal through eight grade. It seemed like every time I was around other kids who even sneezed, I would be stuck at home with  a high fever, …

18 years of endometriosis, and 16 surgeries later, I would definitely consider myself a fighter. Through Leuprorelin (Lupron), which was horrid, I was able to get pregnant with my oldest daughter (she’s about to turn 16). With continued surgeries, I was able to conceive my 12 year old daughter at …

Since the day of my first cycle at the age of 13 I have dealt with excruciating pain, I am now 30 years of age. I missed countless days of school due to pain that would last 4-5 days at a time. For years doctors told me this was normal, …

I am 25 years old, I have a job that I hate to love, and a man who loves me. I found out I have endometriosis at the beginning of 2012. After about 2 or more year’s of unexplained “you have IBS” symptoms, they told me that I have endo. …

I was finally diagnosed with endometriosis about 3 years ago. By then it was very severe. I had taken many trips to my general practitioners office. I was sent home with the misdiagnosis of IBS (irritable bowel syndrome). Things kept getting worse. I knew inside there was something more, something …

I am a fighter like all of you women! I am 26 and I have been blessed with 3 children. I have had all of my female parts taken out because of the endometriosis, yet I am still in pain. I am in and out of the ER and hospital …