Survivor Stories & Information

When do you get “Back to normal?” Maybe the better question is whether or not there even is such a thing as “Normal.” Society tends to make us believe that we should fit into standards they’ve defined in order to be considered a part of the status quo. But what …

Women who suffer with endometriosis largely suffer in silence. After all, we are women. We have to do it all, wear every hat, and tackle every situation with dignity and grace. Never whine, never complain, always be strong for our families. Having endometriosis destroys all hope of accomplishing this stereotype. …

In 2014, I was a normal, everyday mother. I have 3 children. One who is grown, Ryan (23), and a now 17-year-old daughter, Marissa, and a 13-year-old Down Syndrome Daughter, Alexa. I was working toward my nursing degree, and I was 3 years into my pre-requisites. I had suffered with …

My name is Kayla, and I am 25-years-old. Around age 14, I was hospitalized for about a week with Meningitis. Ever since then, the fight with my body has been on. I constantly had all-over body pain and discomfort. I would have horrible headaches and be so tired that I …

Hi, my name is Kefilwe. I am 39-years-old from South Africa. I was diagnosed with endometriosis in 2010 at age 32, 15+ years after going from one doctor to another with absolutely zero help. My journey started when I was around 16/17 years of age with heavy periods that I’d …

Hey everyone, I was diagnosed with endometriosis this past February. I ended up having to have a hysterectomy, but I have had problems in the past and have been to the ER, and yet no one was able to tell me what was wrong with me. For years I have …

Hello, my name is Brittany, and I am only 21 years old. When I was 19, I started to have very painful period cramps and began to feel sick right around my period. At first, I thought there was nothing wrong with that, until it became worse as time went …

Today at 7am, I had my diagnostic laparoscopy, and 2 hours later, as I woke up in recovery, my nurse informed me they had found the endometriosis and removed it all, along with a few fibroids. My eyes filled with tears of relief. I have been waiting for this day to for …

First of all, if you don’t know what endometriosis is, please click the following link to educate yourself before continuing: https://en.wikipedia.org/wiki/Endometriosis The decision to write my story down came from the time I spent reading other people’s stories when I was first diagnosed. It was like my own little support group. …

I HAVE to write this, as I have found it very hard to find people in the same situation as myself. Endometriosis–you wouldn’t have guessed (well, I didn’t) that I had it. I have been on the pill since age sixteen and had two long-term boyfriends, so I have never really been off the …