Home / Cause: Lupus (SLE)

Cause: Lupus (SLE)

Emily’s Story (Lupus)

My family, my friends, doctors, and even strangers, they have all seen my pain. I questioned the other day how many of them actually know what it’s like to live with Lupus. I thought about it and in all honesty, I don’t expect anyone to know what it’s like, I …

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Kamyiah’s Story (Lupus)

Hey my ladies ! I am Kamyiah Blackmon and I am 15 years old. I found out I had lupus in late November of 2013. I remember (before finding out I had lupus) having inflammation in my joints all the time and they were stiff ALL THE TIME (I remember …

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Chloe’s Story (Lupus)

Last year when I had just turned 15, I had been through a year filled with the biggest twists and turns I had ever had in my life. I had taken a trip to Colorado for a youth leadership conference. When I got back I was very stressed from the …

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Alex’s Story (Lupus)

My name is Alexandra Seipp but everyone calls me Alex. I am 20 years old and when I was three I was diagnosed with lupus (SLE). I spent thee months in the children’s ICU before the doctors figured out what was wrong. I was in remission for a few years …

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Koyoda’s Story (Lupus)

I am a 30 year old lady. I once had great dreams of living a happy life, a life with a good life partner, having good children, fulfilling all the ambitions of my parents, get a satisfactory job with good pay, and so on. But all my dreams collapsed when …

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Cecily’s Story (Lupus)

If you told me I would be as sick as I am now, I would not believe you. Ever since childhood I would get random symptoms, like pleurisy, but I had no idea what it was. When I was 14, I developed type one diabetes, an autoimmune disease. I hoped …

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Nqo’s Story (Lupus)

Hi, I am a 21 year old girl living with lupus. It all started four years ago when I started my university studies. I would get a really bad headache that wouldn’t go away with the normal “pain killers.” In 2011, I woke up to a stabbing pain in my …

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Jenn’s Story (Lupus)

When I was 13 I was taken to the hospital for blue fingers and toes, and I had been sleeping more than normal. The hospital diagnosed it as Raynaud’s phenomenon and lupus.  For several years after that, along with various doctors, I was diagnosed and undiagnosed. I had barely graduated …

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