Hey my ladies ! I am Kamyiah Blackmon and I am 15 years old. I found out I had lupus in late November of 2013. I remember (before finding out I had lupus) having inflammation in my joints all the time and they were stiff ALL THE TIME (I remember …
Read More »Chloe’s Story (Lupus)
Last year when I had just turned 15, I had been through a year filled with the biggest twists and turns I had ever had in my life. I had taken a trip to Colorado for a youth leadership conference. When I got back I was very stressed from the …
Read More »Alex’s Story (Lupus)
My name is Alexandra Seipp but everyone calls me Alex. I am 20 years old and when I was three I was diagnosed with lupus (SLE). I spent thee months in the children’s ICU before the doctors figured out what was wrong. I was in remission for a few years …
Read More »Koyoda’s Story (Lupus)
I am a 30 year old lady. I once had great dreams of living a happy life, a life with a good life partner, having good children, fulfilling all the ambitions of my parents, get a satisfactory job with good pay, and so on. But all my dreams collapsed when …
Read More »Cecily’s Story (Lupus)
If you told me I would be as sick as I am now, I would not believe you. Ever since childhood I would get random symptoms, like pleurisy, but I had no idea what it was. When I was 14, I developed type one diabetes, an autoimmune disease. I hoped …
Read More »Michelle’s Story (Lupus)
I am currently 22 years old. When I was born I was born three and a half months early and weighed and and a half pounds. When I was born I received blood transfusions. When I was 17 years old it was October 2008, I was a senior in high …
Read More »Jennifer’s Story (Lupus, Undiagnosed)
I am a 43 woman, working on getting diagnosed with lupus. I don’t even know where to begin. I have had chronic leg aches for several years. Two years ago, I developed skin lesions of the face and arms. I was sent to a dermatologist and the sores were tested. …
Read More »Nqo’s Story (Lupus)
Hi, I am a 21 year old girl living with lupus. It all started four years ago when I started my university studies. I would get a really bad headache that wouldn’t go away with the normal “pain killers.” In 2011, I woke up to a stabbing pain in my …
Read More »Jenn’s Story (Lupus)
When I was 13 I was taken to the hospital for blue fingers and toes, and I had been sleeping more than normal. The hospital diagnosed it as Raynaud’s phenomenon and lupus. For several years after that, along with various doctors, I was diagnosed and undiagnosed. I had barely graduated …
Read More »Monica’s Story (Addison’s Disease, Lupus)
Hi I’m a 43 year old female, and I have been battling so many different symptoms, like pain, lose of energy, rashes, blood levels, anxiety, stress, I could just go on and on. I have a lot of GI problems and 15 months ago I was rushed by ambulance to …
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