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Koyoda’s Story (Lupus)

Koyoda's SLE Lupus Story :) I am a 30 year old lady. I once had great dreams of living a happy life, a life with a good life partner, having good children, fulfilling all the ambitions of my parents, get a satisfactory job with good pay, and so on. But all my dreams collapsed when I was diagnosed with an autoimmune disorder with no permanent treatment.

At the age of 24, I was diagnosed and declared to have SLE Lupus, an autoimmune disorder. I did not understand what really happened to me when my fingers turned blue when they were exposed to cold or when my skin developed rashes when exposed to the sun light. It took nearly a year and a half to figure out what the problem was. By the time I actually started treatment by the rheumatologist I was halfway dead, spending most of the time in bed unable to bear the severe body pains.

I completed getting a good P.G. secured lecturer job and was getting a good salary. I was also about to get married but everything changed in a few days. I lost my job, my hair, my face completely changed, I had joint and muscle pain, and I had to take medicines more than the quantity I ate. I am suffering with lupus nephritis. I am scared when doctors say I may need a kidney transplant in the disease becomes worse.

There are many times that I feel like I should not live. But I have to live. I must live for my family who tried their best to make me better. I have to live for my parents who still hope that I will be cured completely and become the old girl again. I will fight and I will win.

Submitted 01/19/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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