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Michelle’s Story (Lupus)

Michelle's Story (SLE Lupus)I am currently 22 years old. When I was born I was born three and a half months early and weighed and and a half pounds. When I was born I received blood transfusions.

When I was 17 years old it was October 2008, I was a senior in high school. I was athlete I played three sports year around since I was 7 years old. I was scheduled to have my wisdom teeth out and when I woke up my hands and toes were black and I couldn’t feel them. I then was rushed to the ER where labs and test were done, but I had to wait for the results. I waited about one weeks and the ANA test came back positive. One thing let to another. After the episode with my hands and feet, I developed shortness of breath. I was recommend to go to a rheumtologist near my hometown. The doctor informed me that I had SLE Lupus, with mixed connective tissue disease, scleroderma, and raynaud’s disease.

I was unable to finish my senior year in regards to playing all my sports. It got to the point where I was very depressed and didn’t want to do anything. I was put on Predisone for six months and started going to one of the best hospitals in this nation, Mass General in Boston, MA. I now have been a patient at Mass General for almost six years this October (it will be 6 years I’ve been diagnosed).

I have had two right heart catheters, one muscle biopsy, many PFT, many CT Scans, and MRI’s. I never thought six years ago I would be where I am today. I go through my struggles of days where I can’t open a soda bottle, or a door handle, or even get out of bed. I have tired many medications and I am still hoping someday I will go into remission, my doctors informed that this is not very likely due to my other illnesses.

I saw this website and I really wanted to write on it to let everyone know never give up, don’t let this illness get the best of you, keep a positive attitude. Your attitude plays a big role in your life and the way you feel daily. Like I said I didn’t think I would be where I am today. Today I am a nurse working in the ER and giving back to other people. When I got this hump in my road of my life I didn’t let it stop me I reached for my dreams and I am still going, and you guys can too! STAY POSITIVE WE CAN DO THIS!!!

Michelle
Massachusetts
Submitted 09/24/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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2 comments

  1. Thank you for your story Michelle! You are correct, positive attitude and never give up!!! Way to stay strong and give back!!!

  2. My girlfriend have lupus
    she know that last month she have lupus. She is very upset and I am also I don’t know what I do now for my happiness she left me I heard about that today and I m feeling very bad
    I really want to be with her but she didn’t want that I live with her that think (lupus) effect my life also even I don’t have that
    I pry to god for my Girlfriend
    I love her so much so so so much
    and even she left me which she don’t want to do
    I will still waiting for her thst one day she will come to me again
    and I m waiting for her
    and yes i know she also love me more then me

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