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Jennifer’s Story (Lupus, Undiagnosed)

Jennifer's Story (Lupus)I am a 43 woman, working on getting diagnosed with lupus. I don’t even know where to begin. I have had chronic leg aches for several years.

Two years ago, I developed skin lesions of the face and arms. I was sent to a dermatologist and the sores were tested. The tests came back negative of skin cancer. Then blood work was done to test for Lupus. The tests came back with a high probability of Lupus.

I received steroid cream, and the sores cleared up. My doctor and I chose to not partake in medicine since my leg pain was tolerable, I got better.

During the last three months, things have started spiraling downhill. I am now suffering with such severe leg pain that it is hard for me to get up and walk. I am suffering from headaches, vomiting, depression, skin lesions on hands and arms, fatigue, coordination issues, and eye sight problems.

My pain has also moved into my feet and hands. I am scared to death, I work 40 hours a week and it takes all my strength to go to work, smile, and pretend nothing is wrong. I finally got up the courage to make an appointment and get the ball rolling again. I’m afraid one of these days I won’t be able to walk. I feel so alone and helpless. My family really doesn’t understand what it is like to not be able to walk.

I’m frustrated and really need someone to talk to. Thank you.

United States
Submitted 09/17/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. Helen

    Hello, I am really sorry to hear that you suffer from lupus. It sounds it has been struggle to you. I have found this 1 website called stemofamerica which implant a stem cell to lupus patients hence slowly changing your body cell to healthy body cell. There have been some success through this process. Just go and have a look if it is for yo.

  2. lauri

    Jennifer I’m 56 & have had this mystery illness for longer then I’d like. Hang in there your having what’s called a flare….it will feel better when they control your symptoms more. I’m going through one he’ll of a flare myself right now. complex migraines that have aura like a stroke almost everyday, a bad infection and fatigue beyond imagination. It’s like your a box of cracker jacks and you never know what surprises are inside your body. Flare to flare they change. However with education, positive support and good medical support your flares are manageable. ‘m a huge advocate of Lupus of America. You will really good info and resources. There are also many Lupus facebook support groups…..your not alone!

  3. Julie

    Hello Jennifer , I am not going to tell you this is easy I will how ever tell you that you are now in a fight for your life .. I am 54 I have sle the worst type of lupus I have had this for 10 years that we have known about and 11 that we didn’t know about the we vin this is my doctors and my son .. I am a single mom by choice because I am also a mom of a disabled child with no help from anyone … I will tell you though with the right doctor and treatment you will in time get better instead of a flare up .. Also I am not in a wheelchair I exercise on a regular basics not like I used too but slow and stead now … If you have a pool it is a good workout for your legs it will help streaghten them up for you . For your friends and family have them read up on lupus there are great books that helped me when I needed it also have them go to a appt. with you to your dr. so they can help explain what to expect from you and your body.. The Lupus foundation has a lot of great refernces for people needing help .. This is the best advince I can give you besides to exercise your mind and body and tell people you might lose some memory due to this and the y should help out with you… Good luck and be blessed .

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