I am a 38 year old, married, mother of three. I have been sick for a very long time and anyone who has been, knows it’s a hard and frustrating life! For the last 10 years I’ve known SOMETHING was wrong with me, but how do you make doctors and …
Read More »Vicky’s Story (Lupus, Fibromyalgia)
Six years ago I became very sick. After a lot of tests the doctor told me I have: lupus, fibromyalgia, and degenerative disc disease. So much happens to your body, people can look at you, and never know how sick you really are. He also said to me he didn’t …
Read More »Laura’s Story (Lupus, Cerebral Palsy, Bipolar Disorder)
As a kid, I always thought I had psoriasis, and I got laughed at for it. I also had mild cerebral palsy and bipolar disorder. I never, in all my life, thought I had Lupus! I thought I only had CP and the psoriasis. Well, I started having symptoms of …
Read More »Sarah’s Story (Lupus, Fibromyalgia)
I don’t think I’ll ever forget how my diagnoses came about. I thought it was just a routine follow up I was having with my Orthopedic Surgeon concerning my second right shoulder surgery. Then, I mention to my doctor about chronic jaw pain I’ve been having and how I’ve already …
Read More »Victoria and Alan’s Story (Lupus, GIST)
I have Lupus and Scleroderma and my spouse has GIST (gastrointestinal stromal tumor) stage 4. This is is a very rare cancer affecting the digestive tract or nearby structures within the abdomen. He was diagnosed in 2004 and the tumor was removed only for the cancer to return in 2006 and spread to …
Read More »I Am A Spoonie! Are You?
Are YOU a spoonie? Come and find out! The great thing about "The Spoon Theory" is that it isn't solely designated for individuals living with lupus. It can also relate to just about any illness from fibromyalgia, to CFS (Chronic Fatigue Syndrome), and even cancer. It pertains to just about any "invisible illness".
Read More »I Spy A Lupus Warrior!
For those who don't know; October is National Lupus Awareness Month! Even-though we also share this month with Cancer Awareness; I believe it's important for all of us to stand up and use our voices to shed some light on this often over-shadowed illness called lupus!
Read More »The Methotrexate War
You know how your cell phone buzzes and you get that little excited feeling? You know it’s buzzing because someone is thinking about you. They mentioned you in a tweet or sent you a text. Or maybe it’s an email or comment on your Facebook status. This evening my phone …
Read More »The “Invisible” Lupie?
We've been inspired by an awesome lupus warrior, and in celebration of Invisible Illness Awareness Week We have a NEW post I'd like to share with each of you! Too often we find many of us forgotten, looked over, treated as if we were invisible! It's time to shed the ignorance of others & bring light to our illnesses! If we don't spread awareness lovies, who will!? Enjoy the NEW post! It's guaranteed to spark some inspiration ♥ & as always don't forget to pass it on.
Read More »30 Things About My Invisible Illness You May Not Know !
National Invisible Chronic Awareness week was created by Lisa Copen in 2002. She chose THIS year, 2010 for her "Each One Can Reach One" campaign which demonstrates how one person can help another, its completely anonymous unless the "do-er" chooses not to be. The beauty of it is that complete strangers are making a difference in the lives of those living with chronic pain! Of course I have to do my part and blogging for Invisible Illness is just one of them! I want to share some things about my own invisible illness that many of you may not have known. Knowledge is power lovies, and thats just one reason why we should all help to spread it! Each ONE can reach ONE!
Read More »