Cause: Chiari Malformation

At 16 years old, I was diagnosed with a traumatic brain injury. To this day, two years later, I still am facing the pain. I was diagnosed with Chiari malformation, which led me to have brain surgery, due to random passing out, double vision, etc., which then caused hydrocephalus. I am 18 …

I didn’t know I had Chiari until a month after my 33rd birthday. In a way, it explains a lot of things that have been wrong for me. When I was little, I was always sick. I had speech issues, ranging from not being able to say some letters to …

Hi, I haven’t really been anywhere with this besides a diagnosis yet. I had to have a spinal fusion, and the doctor that did the surgery did a horrible job. I found another doctor that I thought could help me. Well, he did for a while. Then he put in a …

I was diagnosed with Chiari malformation when I was 18, but my story doesn’t begin there. I have had migraines since I was about 7 years old. I have been to over 50 doctors about my headaches. One of the doctors even proceeded to ask me if I needed to talk to …

We all have a story to tell, and this is mine. This is my journey to conquer Chiari Malformation. I have a story to tell, a journey set before me, and I will fight. I AM A WARRIOR! I had never even heard of Chiari until around January 20, 2015. …

Everything started when I was 15. I started passing out all the time. I went to numerous doctors, and they all said it was just headaches. When I was 19, I was told it was migraines. My headaches at times were unbearable. While I was pregnant with my second child, I started …

I’ve been getting horrible migraines since I can remember. In 2005, at 17 years old, I began my journey seeing many different doctors and neurologists. I’ve been put on beta blockers, anti-depressants, anti-seizure medications, herbal supplements, nasal sprays, etc. In 2012, my neurologist diagnosed me with Chiari Malformation Type 1 …

Hello, my name is Andi. I was very recently diagnosed with Chiari Malformation. I’m a rough and tumble girl, along with my 3 sisters. I’ve always been the “sick” twin between my twin sister and I. When we were born, I decided to breech last second and forced a C-section. The …

My Struggle with Arnold Chiari Malformation: The Full Story of  How I Fight Like a Girl Hi!! My name is Misty Shay and I am the face of Arnold Chiari Malformation (ACM) Type 1. What is Arnold Chiari? Well at the Chiari Institute in Great Neck, New York it is …

From the moment I was born, my parents knew there was something seriously wrong with me. I was constantly crying in pain and nothing would soothe me. They started taking me to doctors around a month old. The doctors told my parents that some babies are just fussy and I …