Hi, I haven’t really been anywhere with this besides a diagnosis yet. I had to have a spinal fusion, and the doctor that did the surgery did a horrible job. I found another doctor that I thought could help me. Well, he did for a while. Then he put in a pain pump (which I would never want to go without), and it caused a spinal fluid leak which caused the Chiari.
Now, I have nothing to refer to. No one to tell me that I will be ok. All I get from my doctor is, “You shouldn’t be worrying about this right now.” I am at 6.3 mm, and I think I have a right to be scared and worried. I know nothing about this other than what I have learned on the computer, and it has me terrified!!! I haven’t spoken with or met anyone who has this or has been through the surgery for it. I am sooooooooooooooo scared!! I have 2 beautiful teenage girls, and they need me. Will I still be?? If I have the surgery, will I know who I am? Will I know who they are??? I don’t know anything about this at all??? If anyone has been through this and would be willing to reach out to me, I would be so grateful!!!!
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.