Friday, September 18, 2020
Home / Power Stories / Mary’s Story (Chiari Malformation)

Mary’s Story (Chiari Malformation)

Mary's Story Chiari MalformationI didn’t know I had Chiari until a month after my 33rd birthday. In a way, it explains a lot of things that have been wrong for me.

When I was little, I was always sick. I had speech issues, ranging from not being able to say some letters to stuttering. I went to speech therapy for three years and was able to start saying the letters I couldn’t say. I seem to recall not being able to say L, T, and S. At any rate, I can say them now, but I still have my stutter, although that seems to come and go. If I am more nervous, it comes back. If I meditate, it is not as noticeable.

In May of 2014, I was at work when I had my first-ever vertigo episode. I was setting up a job on the machine I run. I was standing on a stool, bent over the machine, to be able to set the job up. When I stood up, I felt light-headed. It wasn’t my normal light-headed feeling. I immediately went to a coworker and told her. Within half an hour, I was on the floor of the first-aid room, sweating, and I couldn’t keep my eyes open because the room was spinning. I was taken to the hospital via ambulance where they did the quick little tests to see if I was having a stroke (which I didn’t have). An MRI was performed, and that’s when they found the Chiari Malformation.

Now, I don’t really know what other things I have that can be attributed to Chiari, but I am making an appointment with a neurologist, just to make sure nothing else is wrong with my brain or nervous system. My headaches have become different. I get dizzy a lot easier than I used to, and my right shoulder tightens up a lot.

What scares me the most is that I live alone with my dog and cat. I am afraid that I’ll have another vertigo episode and will not be able to call for help. But one day at a time, I’ll survive!

Mary
New Hampshire
Submitted 03/14/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

Check Also

Tyffanie’s Story (Chiari Malformation)

I am actually telling my daughter’s story. Even though I myself don’t have Chiari, I …

One comment

  1. Praying for you I was misdiagnosed for years muscle spasms bad headaches blurred vision I just got November this year when I moved to NY one of the best things in my life I’m still fighting with these problems rite today not to mention swollen optic nerves Hugh this pain is unbearable so keep your head up and keep fighting

Leave a Reply

Your email address will not be published. Required fields are marked *