I was diagnosed with Chiari malformation when I was 18, but my story doesn’t begin there. I have had migraines since I was about 7 years old. I have been to over 50 doctors about my headaches. One of the doctors even proceeded to ask me if I needed to talk to a counselor. I started telling my mom that I wouldn’t go to the doctor’s unless I was dying. My Chiari has caused me to pass out and sometimes to seize out. I have scared my family and my friends.
I went back to the doctor in December of last year, and the next doctor proceeded to tell me I just have Chiari malformation because I am fat. Since then, I have lost over 20 pounds, and my migraines have gotten worse. I’m 19 now, and it’s been a year since I was diagnosed with Chiari. I don’t have the money or the time for surgery. I’m juggling college and Chiari now, and I feel like the more I go, the worse my headaches get. I have been getting worse over this year, and I would just like to know if that’s normal. I just need to talk to other people that have this malformation.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.