I was only diagnosed seven years ago, but I’ve had symptoms of still’s disease form 14 to 27 years ago! I’ve tried every medication out there and nothing has been effective enough to reduce the steroids. Now I have steroid induced Cushing’s, high blood pressure, high cholesterol, steroid induced osteoporosis, leaky …
Read More »Deeann Elizabeth’s Story (CRPS)
Deeann Elizabeth Pavlick. Battling reflex sympathetic dystrophy. Former proprietor of five interior decorating florist shops. I was born in New Jersey, with an artistic quality in designing, which I used in my businesses. While attending floral and interior classes in Florida I also did freelance modeling. I attended John Robert …
Read More »Tiffany’s Story (CRPS)
My name is Tiffany and I am 24 years old. For the past 11 years, I have been fighting a battle of chronic pain called Reflex Sympathetic Dystrophy (RSD) and Complex Regional Pain Syndrome (CRPS), or shortened to RSD/CRPS. Reflex sympathetic dystrophy is a clinical syndrome of variable course and …
Read More »Natalie’s Story (Endometriosis)
My name is Natalie, I’m 42, and I’ve had severe endometriosis since I was 16 years old (it runs in my family). I went through five years of many doctors (who couldn’t believe someone so young could have it so bad), missed high school and college, had horrible pain, GI …
Read More »Martina’s Story (PCOS)
I had no clue after having a beautiful baby boy 15 years ago at the age 22 how much my life would change physically. I had been thin my whole life, weight was never an issue for me. I did have strange skin issues as a kid and it always …
Read More »Jennifer’s Story (Lupus, Undiagnosed)
I am a 43 woman, working on getting diagnosed with lupus. I don’t even know where to begin. I have had chronic leg aches for several years. Two years ago, I developed skin lesions of the face and arms. I was sent to a dermatologist and the sores were tested. …
Read More »Maia’s Story (Ankylosing Spondylitis)
I am actually writing this story for my 10 year old daughter Maia who was diagnosed with AS and more… My daughter Maia was born on November 17, 2002,through an IVF procedure. I lost her twin at 11 weeks and five days. Maia came into this world a fighter eight …
Read More »Sandra’s Story (Endometriosis)
When I was 23 I saw an ad in the Yellow Pages for “Pelvic Pain” and decided to call. That one small 2 x 2 piece of paper changed my life in ways I can hardly believe sometimes. My period began when I was 14, with a vengeance. Throughout high …
Read More »Cynthia’s Story (Breast Cancer)
I originally found a lump in my left breast way back in 2012. My mom was not well, nothing serious (so we thought) but I dutifully took her shopping, completed her errands, and chores. I am 56 years old. My grandmother died at 56 from oat cell cancer, liver cancer, …
Read More »Carole’s Story (Gastroparesis)
My name is Carole Garrison and I am 22 years old. I live in the upstate of South Carolina and six years ago I was hit head on by a drugged driver that forever left me with permanent injuries. I thought it was the toughest battle of my life to …
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