I was in middle school when my symptoms started. I would wake up five minutes before the bus would come, then sleep the eight minute ride all the way to school, then sleep through each class, sleep on the bus all the way home, and then sleep all night. I was a straight A student but by mid year I was failing every class.
My grandma knew something was wrong and she rushed me to the doctor. He went from head to toe examining me. He said, “I know what is wrong .” He then had me life flighted to the children’s hospital. The doctor said that if I would have slept one more day I wouldn’t be here. I’m now 23 and every time I get sick it goes to my lungs because that is the weakest point in my body.
I now have stage one liver failure because of the growth hormone shots. This disease needs more awareness and needs a cure. I will out live my expectancy whether they believe it or not. I will not give up, I will fight to the end because I want there to be a cure. This is my goal, this is what keeps me going to college for pre-med, this is my life and I am taking charge !
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.