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Erika’s Story (Migraines)

Erika's Story (Chronic Migraines)Here is a little introduction : Hello! I’m Erika, a 23 year old wife and mommy of two boys. I’m from New York and currently enrolled in college.

Life was wonderful until two years ago when I had my tonsils and adenoids removed. A few days after I had them removed I had the worst head pain I’ve ever felt in my life. There was no way I thought having my tonsils and adenoids removed could cause so much pain! I went into the ER by ambulance, a few test and hours of being on morphine later, they had found out the nerve in my head had gotten infected. After I was treated and sent home everything seemed okay, until May of 2013.

May 2013 is when I began to have unbearable head pain (It sounded like my heart was in my head, my head felt like it was throbbing. If it was too hot it made it worse, if it was too cold it made it worse. The light always seemed to bother me and I could never get my room to be dark or quiet enough). It wasn’t until August 2013 that I decided to go back to the ER. Well that didn’t get me far. The ER doctor had me diagnosed and sent out the door before I was even fully admitted. The ER referred me to an ENT saying all my problems must be that. So of course I went to the ENT and what do you know it’s not ENT related at all. So just to be positive the ENT didn’t miss something I made a doctors appointment with my allergist (since I have lots of allergies and sinus problems). Well my allergist listened to my list of symptoms and took a look at me and said, “You have migraines.” YES FINALLY!! Someone knows what’s wrong with me.

Until I could find a neurologist my allergist puts me on Sumatriptan to help with the pain of the migraines (and let me tell you, the side effects were crazy but I just wanted the pain of the migraine to be gone)! So then in September 2013, I start to go to a neurologist. He put me on Topamax (doesn’t work), then he put me on Kappra (doesn’t work and makes me sleep for 14 hours straight), he puts me on Gabbapentin (doesn’t work).

Here we are June 2014, and I’ve had the same migraine for one year straight with little to no relief. In May 2013 my neurologist called me (he hear’s me talk to my son in the background, he says I need to get a spinal tap, he then tells me I can’t possibly be in all the pain I’m in if I’m taking care of my son, he then proceeds to tell me I’m making up all my symptoms and I’m faking everything). I did not get the spinal tap, I changed neurologist. I wasn’t going to let a doctor talk to me that way.

In May 2014, I decided to go and get tested for Lyme Disease as I felt my symptoms and migraines fit that better. Well what do you know, my Lyme Disease comes back positive (I want that smuck of a doctor to tell me how I’m faking all those symptoms now)! As of tomorrow, 6/3/2014, I will be seeing a new neurologist and I will be getting a spinal tap to confirm neurological Lyme Disease. Hopefully after this long miserable dark lonely tunnel I’ve been living in for the last two years will be gone. I will have won. I will finally be back to normal. I will be the fun mommy who isn’t tired or can’t read books to her kids because her head hurts too much and I can’t make out the words to the books. I will be the fun wife who won’t have a problem being intimate anymore because my head and body won’t hurt. I never gave up, I always smiled, I always tried to be the same fun mommy and wife. I’m just glad I can finally make sense of it all and I can go back to living a full life.

I might have migraines and Lyme disease but they don’t have me!

New York
Submitted 06/02/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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