Hello, my name is Tracy Fapetu. I was diagnosed with Arnold Chiari Malformation about 2 weeks ago. It all started back home in Nashville, Tennessee in 2012, after going back and forth to the doctor about headaches, dizziness, gaining a lot of weight and not knowing why, back pain, and muscle spasms. I often got headaches every other day, all day, and nothing would make them go away. I was always told to take some Tylenol or given pain medication. It was like nobody cared about me. It even led up to me losing my job, but I didn’t give up. I kept on struggling and striving to do my best. I was even told that I had plantar fascia for the numbness and tingling in my hands and feet and was sent to a foot specialist.
At the time all of these things were going on, I was a single parent of 3. I kept switching doctors because I always said he/she don’t know what they were doing. That still didn’t take the pain away, but I had to be strong about it and do what I had to at the time. I had to deal with the pain and suffering for 3 years.
In 2014, I met the man that changed my life, and my husband and I moved to New York City. I decided to go and get checked out by a doctor, and she referred me to a eye doctor, and he then referred me to a neuro specialist, who then ordered an MRI and a lumbar puncture and finally got me some closure for my problems. I want to say thanks to my doctors and my husband. Now I’m on a road to getting it under control. My husband has been here with me through this struggle, and I thank him for that.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.