My name is Tonya, I am a 42 year old wife and mother of two grown daughters. I have been in pain since I was about 13, when I was diagnosed with Juvenile Rheumatoid Arthritis. At that time it only affected my knees. Then in my early twenties I was tested for lupus and rheumatoid arthritis, all tests were negative. I was told to get more sleep and to live with it. I have struggled with random pains ever since. Although while I was pregnant with my girls the pain did subside.
In 2003 my husband was diagnosed and treated for testicular cancer. After 12 weeks of treatment and lots of running around, he was cancer free, and still is. Also, in 2003 I took a hard fall down some slippery steps severely bruising my tail bone. After about three weeks my stomach started to flare and I was diagnosed with IBS which I was told was stress induced. I had to learn how and when to eat to make it thru the day, whether I was staying home or going somewhere. I went to see several more doctors and had more tests done, had my gall bladder removed, some endometriosis removed, and tried several meds that just didn’t work. I was then diagnosed with Ankylosing Spondylitis and was treated with prednisone and plaquenil, which made no difference.
In Nov. of 2010 I started treatments for fibromyalgia; weekly IVs, weekly viral shots, iron shots, and I was taking 62 pills/supplements/hormones a day. I changed my diet and did as the dr told me to do, nothing helped.
After 11 years and several drs later I am still looking for answers. I recently went to see a new Rheumatolgist and she confirmed the fibro diagnosis, told me that I have bursitis in my hips, and is testing me for the Ankylosing Spondylitis. She is referring me to see a neurologist for my migranes and prescribed me with amitryptiline to help me sleep. I am getting more and more frustrated as time goes by and the pain gets worse, I am tired of waking up in so much pain and not having the energy to do the things that I used to do. I try to walk 4 miles a day when possible and I am trying really hard to eat right. I do have a supportive husband and both daughters are too, but I just don’t think they understand how much pain I really have.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.