Survivor Stories & Information

For three years now, I am a 2 time survivor of cervical cancer. Let me start my story by saying that I probably had cancer long before we found out. I was too stubborn to go to the doctor. I have always had painful, heavy periods. At the  age 13, I had …

When I was 16-months-old, on the cusp of toddler-hood, doctors told my mother and father that I would not live to see my 10th birthday. I was diagnosed with cystinosis, a condition so incredibly rare, that the majority of doctors have never ever heard of it, let alone have any …

I was born with hydrocephalus. I have had over 250 brain surgeries. I have a VP shunt (ventriculo-peritoneal shunt) right now. When they tried a VA shunt (ventriculo-atrial shunt), it caused a blood clot in my heart. So I had to have open heart surgery to get rid of it. It …

When I was 35, I was diagnosed with Hodgkin’s Lymphoma, borderline stage 3. I went through 9 months of chemotherapy consisting of (ABVD) Adramycin, Bleomycin, Vinblastine, and Dacarbazine. Luckily I had a wonderful doctor in Columbia, Missouri at Ellis Fischel. That was 14 years ago. It’s hard. It really is. You …

I had such bad abdominal pain, it was insane. I would get these cramps every single day, for hours straight, and I thought it was just my period. Finally I got fed up and told my mom. She made a doctor’s appointment and I had to get 3 ultrasounds and …

After fighting for years with mysterious symptoms; everything from skin problems to internal problems, the doctors had no answers for me. Once I gave birth to my second son, my body finally collapsed. Within weeks of having him, my doctors were testing me for everything in the books. Finally at …

In January 2011, a couple of months after turning age 51, I found out I had a meningioma tumor in my brain.  Had surgery…it was benign (thank God) and had a follow-up gamma knife radiation treatment in June of the same year to remove a tiny piece that was left behind.  …

Hi, my name is Paige. I am 21 now, but I was diagnosed with DLE Lupus (discoid lupus erythematosus) when I was 15. I started getting these rashes on my face and ears after I got a really bad sunburn after snow skiing. I then began to want to sleep …

I have been suffering with endometriosis for as long as I can remember. I also have PCOS. It is a struggle especially without insurance. I have tried the Lupron shots which were a momentary tease. I have recently signed up for the Violet Petal research study but have not yet …

Hi, my name is Danielle. I am a fan of the Facebook page, Fight Like a Girl.  This story is a little different. I have a very rare syndrome called Superior Mesenteric Artery Syndrome. Only around 500 of us in this world have this, from the latest studies. I do …