I have been a single mom for thirty years. The dad would show up in the picture from time to time. My younger year’s started out as a struggle anyway. When I was 37 my mother passed away from Ovarian Cancer, she was only 60. It was only then that …
Read More »I was finally diagnosed with endometriosis about 3 years ago. By then it was very severe. I had taken many trips to my general practitioners office. I was sent home with the misdiagnosis of IBS (irritable bowel syndrome). Things kept getting worse. I knew inside there was something more, something …
Read More »Dear World, My name is Maddison Parker, I am 9 years old, and I have Ehlers-Danlos Syndrome. I want the world to understand Ehlers-Danlos Syndrome, so am sending this email out. I have some questions for you all! I would like to know why no-one cares about Ehlers-Danlos Syndrome? May was Ehlers-Danlos …
Read More »I am a fighter like all of you women! I am 26 and I have been blessed with 3 children. I have had all of my female parts taken out because of the endometriosis, yet I am still in pain. I am in and out of the ER and hospital …
Read More »I just want to start out saying I am writing this for my mother. Her story needs to be heard. My mom was diagnosed with RSD, or complex regional pain syndrome. She was 21 years old when she found out. She is 54 years old today. About 6 years ago, my …
Read More »I am Jamela and I’m 19 years old. After long hours of practicing in a school choir, when I was ten, I collapsed. My mom took me to a doctor and I was diagnosed with lupus. For a second opinion, mom and dad took me to another doctor, but I …
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I went for a routine mammogram in February of 2012. They said there was something ‘different’ and I needed to come back for another mammogram under magnification. Well, I was diagnosed with breast cancer on March 13, 2012. After two lumpectomies and radiation treatment, which I just finished on 10/8/2012, …
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This is actually about my 8 year old daughter. Two and half years ago we found out that she had chiari malformation, along with other health problems. On June 28, 2010, she had decompression surgery. Since then, we have had quite the struggle dealing with everything that has come from …
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On March 11, 2011, I was rushed into emergency surgery where they removed a grapefruit sized tumor from my colon. The symptoms that I had up to that point were textbook according to WebMD. However, I blew off the advice that informed me to visit a doctor immediately. For one, …
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My medical journey started at a young age. I learned only just recently how the pieces of my puzzle fit together. My mother was diagnosed with breast cancer for the first time in her 50’s. I decided I would push for an early mammogram, never thinking that I would have …
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