Survivor Stories & Information

I just want to start out saying I am writing this for my mother. Her story needs to be heard. My mom was diagnosed with RSD, or complex regional pain syndrome.  She was 21 years old when she found out. She is 54 years old today. About 6 years ago, my …

I am Jamela and I’m 19 years old. After long hours of practicing in a school choir, when I was ten, I collapsed. My mom took me to a doctor and I was diagnosed with lupus. For a second opinion, mom and dad took me to another doctor, but I …

I went for a routine mammogram in February of 2012. They said there was something ‘different’ and I needed to come back for another mammogram under magnification. Well, I was diagnosed with breast cancer on March 13, 2012. After two lumpectomies and radiation treatment, which I just finished on 10/8/2012, …

This is actually about my 8 year old daughter. Two and half years ago we found out that she had chiari malformation, along with other health problems. On June 28, 2010, she had decompression surgery. Since then, we have had quite the struggle dealing with everything that has come from …

On March 11, 2011, I was rushed into emergency surgery where they removed a grapefruit sized tumor from my colon. The symptoms that I had up to that point were textbook according to WebMD. However, I blew off the advice that informed me to visit a doctor immediately. For one, …

My medical journey started at a young age. I learned only just recently how the pieces of my puzzle fit together. My mother was diagnosed with breast cancer for the first time in her 50’s. I decided I would push for an early mammogram, never thinking that I would have …

 My story is a real life horror story. My name is Karen, and I’ve been living with severe Crohn’s disease for 35 years. I have been allergic to all the medications that are used for the treatment of this horrible disease.  I was first diagnosed with Crohn’s when I was a mere …

My name is Phyllis K from Lincoln Delaware and originally from NYC. I have had heart disease for 35 years. I have had 3 heart surgeries to replace my tricuspid valve. In 2000, I was diagnosed with Atrial Fibulation and  am now on blood thinners. I had a brain bleed …

My name is Lisa. I’m 40 yrs old and recovering from a bowel resection surgery and lysis adhesion surgery. My story began I guess years ago, at the age of 31, with my 3rd child. They had done a complete lysis adhesion removal because my stomach was so taken over …

My name is Alexa. At the young age of 17, I was a married and a mom of a little boy. I did not expect to become pregnant again so soon after my first pregnancy. The second time around, I was so sick. I soon got to be 87 lbs. …