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Sammie’s Story (Endometriosis)

Yellow RibbonI am 20 years old and I was diagnosed with endometriosis about two and a half  years ago. My twin sister was diagnosed when she was 16 and we are fighting it every single day.

When the doctor told her she had endo he put her through hell. She had surgery that did nothing, twice! Then he put her on Lupron, which can give her osteoporosis and puts her body through pre-menopause. She has recently seen a new doctor, which I have also seen who is finally treating her correctly by giving her surgery to burn the endo and try and get rid of as much of the scar tissue as they can.

I am still trying to figure my body out. I suffer every day from cramping and I was put on a dose and a half of Cryselle (birth control pill) a day to stop my period completely but it is horrible. I cramp terribly, I gained about 15 pounds which gave me stretch marks all over my body, and it gives me terrible mood swings. I am so mad at my body all the time because I can’t do the things I want to do. It hurts to have sex, even just getting turned on is painful. If anybody has advice, PLEASE feel free to comment.

Sammie
Pennsylvania
Submitted 06/12/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. Beth Raderstorf

    My sister also has it and I know how tough it has been for her. I admire you and your twin. Please don’t stop fighting. I’m here to support you both as I do my sister. Good luck and best wishes.
    Hugs,
    Beth.

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