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Robyn’s Fight Like a Girl Story (Epilepsy)

Hi! My name is Robyn, and I’m an epileptic from Maryland, and this is my story. My story begins on the evening of December 30th, 2015. I was going into the kitchen, and then face-planted between the kitchen and the family room. Apparently I’d had a seizure, but don’t remember anything after that.

One of my parents called 911, and the next thing I remember is waking up in back of an ambulance going to the hospital. I only remember bits and pieces of being in the emergency room, so I’ll just tell you what I do remember. I remember being moved from the gurney to a bed. I remember being brought in for a CAT scan. I remember the guy that took me. And I especially remember leaving the hospital.

Fast forward to a few days later. My mom was looking into neurologists and called my granddad (her dad) for some help. Since he used to be the president of the board at Johns Hopkins, he used some of his contacts, which led us to the First Seizure Clinic at Johns Hopkins. There, I had an EEG and a doctor’s appointment. I had an MRI done on January 10th, 2016. Then, five days later, we found out that it was epilepsy.

I’ve had four more seizures since being diagnosed. Epilepsy may affect my life, but it doesn’t get to determine how I live it. I do!

Submitted 02/15/2017

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. Vironica

    I too was diagnosed with epilepsy. We can do it! Fight on!

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