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Hayley’s Story (Leukemia)

Hayley's Story AMLOn the 8th of January, I was diagnosed with AML. I was shocked and absolutely devastated. I didn’t want to die. A day after the diagnosis, I decided that I wasn’t going to let this beat me. All I did was stay positive and focus on the best outcome. It was only a week, and I commenced my first round of chemo. It had done its job, and I was in remission.

During this time was the hair loss. I had beautiful long hair, but I knew I had to be strong and cut it off. So to prepare myself, I got my cousin to cut it a tad shorter than my shoulders. It started to fall out bad, so I got the courage to shave it off myself. This on its own showed me strength I never knew I had. So, with being in remission, I got to go home for a week and come back and start RND 2 as an outpatient. Unfortunately, the AML returned. I had to go back to hospital for RND 3. I wasn’t recovering at all and needed a bone marrow transplant. I was transferred to a new hospital to have this done.

At this point, my white blood cells still weren’t recovering, so I had no immune system. I got a sinus infection and then started to go downhill. I got severe infections and was put in ICU on life support. All my major organs were failing, and I was dying. My family was told to prepare. Then miraculously, my transplant grafted, and my body started to fight back. I don’t have any recollection of this, due to being in a coma. I was woken up after being asleep for 18 days. I was scared and unsure of what was happening. I had lost 12kg and was small to begin with. My skin was different, and worst of all, I lost all strength and mobility. I couldn’t walk, feed myself, go to the toilet or anything. It was extremely hard for me to understand, but I just kept pushing through.

Today it has been around 2 months since I woke up, and I’m now out of hospital at a private leukemia foundation house for myself and my parents. I can now walk, shower, use the toliet, make drinks and small foods, make my bed, etc. I’m still a long way off from being back to myself again, but I’m grateful I’m here. All my doctors say I’m a miracle case and tell me I’m lucky to be here and that I amazed them with my recovery.

I had never imagined that this would happen to me, but it did, and I grew stronger and braver than I have ever have been. I’m lucky that I had a donor for transplant because if I didn’t, I would not be here. I spent 7 months in hospital, and I’m out. This disease will never take me down. Stay positive, no matter what your situation is.

Hayley
New South Wales, Australia
Submitted 08/19/2016

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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9 comments

  1. Brigitte Estelle

    http://www.fightlikeagirlclub.com/brigitte-estelles-fight-like-a-girl-story-non-hodgkins-lymphoma/earest Hayley,

    I wanted to write you some words of encouragement, but HELL what a wonderful unexpected strong , beautiful young lady you are!! I am sorry for your fear, and your harsh journey. Please Hayley remember that you might have cancer, but it DOES NOT HAVE YOU!
    Today has been one of those days and after reading your lovely story today you are the one I am thinking of, my encouragement, my smile, my taking time to stop and reflect on anything and everything positive, at this moment I am a happy camper due to a youg girl’s journey thru hell and back and was able to show us that “fighting like a girl” is worth it and let alone to find the courage to write but also to allow herself to NOT be defeated nor to stand back and take this shit! Hayley, please keep writing we need more HEROES like you in this great club of strong fighters !! KEEP FIGHTING LIKE A GIRL !

    Hayley from Canada. I LOVE YOU and you are in my prayers!!
    Brigitte Estelle xxx♡xxx
    ( I would be so honored if you would write to my sister on the site above)

  2. So proud of you Hayley, I never once thought this horrible disease would get the better of you & always new you would fight until you have beaten this.
    Love always Dad xoxoxo.

  3. I new you were strong…not that strong…you are a miricale you are amazing….love you Hayley

  4. Hayley is a true fighter,isaw when her life hung in the balance and she was at deaths door she never gave up the fight,she is a inspiration and alight in our lives!

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