My battles haven’t ended and they won’t. I was born with a heart condition called tricuspid atresia. Additionally, I have scoliosis and was finally diagnosed with Klippel–Feil syndrome (KFS) 8 years ago. The KFS gives me a migraine every day and after multiple surgeries, I can no longer move my …
Read More »Sophia’s Story (Trisomy 18, CHD)
At about 32 weeks pregnant, our world was turned upside down. We had a normal pregnancy until I was about 28 weeks pregnant. I started carrying extra fluid, so the OB decided to send us to a maternal fetal medicine specialist to check her renal system. While we were having …
Read More »Becca’s Story (Heart Surgery)
Hi Everyone, This weekend I did what the average teenager does over the weekend. I went to a surprise 18th birthday party for a friend of mine, and then the next day I went shopping for a prom dress with my friends. While I enjoyed being able to enjoy the ”normal” teen life, …
Read More »Gabriella’s Story (Congenital Heart Disease)
My high school sweetheart and I married in February 2002 at the young ages of 20 and 19. We decided a year and a half later it was time to start a family. It took 9 months of trying before we successfully conceived our first baby. She was born Friday, …
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