My whole life I’ve struggled with pain, fatigue and various other ‘symptoms’ that I had no idea were actually symptoms until this past year. I was born with vitiligo so from the jump I’ve looked different and then, when I was 15 we realized I had thyroid disease. That was the first step in this whole process. The issue was even when my levels were fine, I still didn’t feel like a ‘normal person’.
I started diving deeper, doing my own research, seeing specialists and finally this past year I asked my doctor to run an autoimmune panel. This is when I also found out I have neonatal systemic lupus among about 4 other different autoimmune related ailments that for years (or since birth) I’ve simply just suffered with.
My entire life, I was told nothing was wrong with me; that I was simply lazy. That’s clearly not the case. I’m the mother of a beautiful 7 year old little girl and a caregiver as well. It hasn’t been an easy road and I still struggle daily but I keep fighting because in reality what other choice do we have? We can do this, we can overcome and maybe one day a cure will be found. I keep this hope.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.