I was diagnosed with CF when I was 20 years old and had about 73 percent lung capacity. My daily routine consists of 1-2 hours of medicine/therapy first thing in the morning with other medicine/therapy a couple of times throughout the day to keep me healthy. Now, I fight to stay above 40 percent lung capacity.
I am now in the process of trying to decided if I’m willing to have a lung transplant, not what every 33-year-old wants to think about. I’ve been hospitalized up to five times in a year. I’m sent home with a PICC Line on IV antibiotics, which I’ve been on for up to two months at a time.
I am very proud to have CF– not glad– but proud. I take very good care of myself, even though I know that I cannot physically do what other people can. I live with CF, but I don’t let it control my life. I have a great inspiration in my life, people who are never willing to let me give up or give up on me: my husband, brother, father, in-laws, and my doctor. I have nothing but love and respect for Dr. G, he sacrifices everyday to bring a tomorrow for someone else. I want to bring awareness about this genetic disease that affects 30,000 children and adults in the United States.
The informational content of this article is intended to convey a personal experience and,
because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.