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Tara’s Story (Endometriosis)

Tara's Story (Endometriosis) LRI am now 21 and a fighter of endometriosis. I started having problems at age 15, but thought the problems were normal. I even had conformation from a doctor and family that these issues were normal. At age 17 I couldn’t take it anymore, I was in and out of the hospital and missing so much school.

I went to an ob/gyn and we scheduled my first laproscopy. After my surgery, I was diagnosed with endometriosis. I was devastated.  At 17, who can comprehend being told you have an incurable, painful disease? I know I couldn’t. Now, at age 21, I have had two laproscopies done, I have had three ob/gyn’s, and still no cure. Not only have I had two surgeries but I also have dealt with hormone treatments, birth control switching constantly (in an attempt to alleviate pain and stop my 20 day long periods), and being injured by a medication prescribed to me to help my endometriosis. I now have a huge pile of medical bills and a cluster of other health problems, but I won’t let that stop me. I am fighting for a cure, not only for myself and others like me, but for my daughter too.

It is extremely hard to get pregnant with endometriosis as severe as mine, so when my fiance’ and I got the news we were having a baby, we rejoiced. Kimiko is now nearly three years old, and I worry everyday that she will also have endometriosis. I know how hard I fight to go through each and every day.  Pain medications and a strong will are the only things allowing me to make it to class everyday. At age 21 I have a hard time playing with my daughter, and have to struggle to walk to class. This isn’t right, and I will stand up for myself and fight endometriosis to the death. I will never give up and I will continue to research every outlet available. After six years of fight, I’m proud to say, I’m still going strong, I fight like a girl 🙂

Submitted 10-19-11

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. Cheyenne

    I myself have overy issues had two surgery s and two speaclists they ended up removing a huge growth and my overy off my pelvis wall and the sad part is they won’t give me nothing for my pain I have endometriosis but that tell Me I have to Love with pain and pretty much screw you. It’s not fair.

    • Cheyenne

      I still have both overy s it does cause you other health issues. Been sick for Almost five years now help.

    • Jenn

      Living with this condition forces you to become your own advocate! If you don’t like what the doctors are doing and/or saying, if you don’t feel the level of care is lacking…….Go to another doctor; get a second, third and fourth opinion if you do not feel the quality is there! You are working against the clock and this condition is made worse by stress.

    • Phyl

      I am 55 years old. I lived with endometriosis for my entire reproductive years. When I was diagonosed years ago when I was 19, there was not much known about endometriosis in those days. I was always in and out of hospital for surgeries and laproscopies. My first laproscopy was the sickest I have ever been in my life. I was in so much pain and so nauseated I could not do anything. I was told that my fallopian tubes were 80 per cent blocked with scar tissue and I also had a uterine fibroids and cysts. In other words my reproduction organs were I mess. I have endured excruciating pain almost from the moment I had my lst period. I have been on several meds but known helped the pain ofendometrioisis, nor the other symtoms of nausea, constipation, diarhhea and just all over feeling horrible. The good news is that I was able to conceive once and had a son. In later years I also developed uterine fibroids to the point of bleeding so heavily that I would have to change pads or tampons every hour or sooner. I finally made the decision to take the shot Depo Provera and it changed my life. I don’t recommend to those who still want to try conceive, however if you are older it should be a consideration. It may cause earlier menopause, but it was worth it for me.

      • Phyl

        I meant none of the medications helped with my endometriosis’ excruiating pain. I was told that pain of endometriosis was worse than childbirth and that is true. I had no where close to the pain of endometriosis when I went into labor with my son. The doctor actually talked me into having an epidural because he thought my pain would be to much. He didn’t understand that I have been have labor pains every month for the last 10 years!

      • Dana

        I was on the depo for too long. Gained way to much weight, and now can’t get off. Still have endo and wanting/trying to have a baby. Pain management did not help and cost my parents more money. I have been diagnosed for 15 years. I am 34. Still in pain and now they say I also have PCOS. WE REALLY NEED A CURE!!!!

  2. Kristin

    My story is still being written, but here goes with what’s happened so far. I started my period when I was 12. It was always abnormal, in both level of pain and irregularity. I missed alot of school and once I started working, missed alot of work. Every month, I would find myself, doubled over in the bathroom in so much pain it made me see double, halfway through a waitressing shift, trying to pull it together to not vomit on my table. I’d ask my close girl friends, of which I have very few, how bad their cramps were regularly, just to compare. Well, come to find out, everybody thinks theirs are the worst, so they were of no help. Finally, on my birthday in 2009(how shitty is that!?) at 4am I was awoken by the worst pain I’ve ever felt in my life. My friend, an EMT, rushed me to the emergency room, where I was given morphine and an ultrasound. They “diagnosed” me with endometriosis. I was “treated” for endometriosis for two and half years before any ob-gyn mentioned that you can’t diagnose endo from an ultrasound. In those two and a half years, I was given every form of birth control available, all with side effects that made my periods seem pleasant! Now, I have been on Depo-Provera for 1.5yrs and let me tell you, it sucks!!! The symptoms came on gradually, so it wasn’t until I flipped out and broke a window that I realized I was more depressed and angry than I could handle. I realized the extent that the Depo had on my personality and hormones and that I could not longer control my emotions. For me, Depo is dangerous. I came off of it for three months and it was like a light switch. I was a completely different and happier person. No more laying in bed for hours crying and definitely no more property damage!! However, I am in a loving relationship and I needed to be on birth control. So, my ob-gyn asked me if I would giver Mirena a go. She suggested that since my history of dysmenorrhea is so bad, I should take one more shot of Depo to smooth the first couple of months of cramping associated with the MIrena. I have had the Mirena for aobut 3 weeks and everyday is a challenge with it!! I want to give it a little longer to see if it will work, but omg! My depo wears off next weekend, so we shall see how it goes. It has been a nightmare trying to get a doc to believe the level of pain I have. We are just beginning to discuss laprascopy, which I think should have been a topic of discussion years ago, but apparently it wasn’t important to my ob-gyn. So, that’s where I’m at in this epic drama.

    Tara, one question I have for you is: What injury did you have and from what type of birth control?
    (“being injured by a medication prescribed to me to help my endometriosis”)

    Since I have been on depo, I have suffered a dislocated pubic symphisis, the right side of my pelvis has rotate forward causing my lumbar spine to rotate and open up to the left, and I have subluxated my shoulder. I am wondering if you have had any similar injuries. I have read that Depo and other birth controls can increase the levels of relaxin in your body, therefore causing joints to possibly dislocate or subluxate. As if endometriosis isn’t enough!? I’ve been in physical therapy for several months which has not helped at all, and today I got an MRI to see if surgery is a possiblity.

    Anyway, that’s just a little bit of my story. I’m definitely in a stage where I am losing hope and strength and am putting way too much of my problems on my boyfriend’s shoulders. One thing this has taught me though, is that I have to be my own advocate and that it is okay to ask for help!!! I want to thank the women on this website for coming forward and being advocates for themselves, me and alll the other women suffering with this crap! Thanks for giving me a leg up when I’m feeling really down! I’m so glad I found you guys!

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