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Kathy’s Story (Endometriosis)

Yellow Ribbon LRMy Endo story is very long, so I will try to keep it short. Regular doctors and ObGyns will tend to ignore your complaints and not do anything except put you on bcp to regulate your cycle. After many years of severe pain, my ObGyn did a lap and removed a ton of Endometriosis from everywhere. She said it was the worst case she had seen and labeled me Stage IV. She told me I needed a Hysterectomy. I insisted on seeing a specialist.

I went to an awesome Gyno Endocrinologist in Akron, Ohio. I wasn’t ready to have kids because I hadn’t found my husband yet. He did 3 surgeries through the years and many treatments including Lupron which, for me, was amazing!

Unfortunately, after all of this, we attempted to conceive and did many tries with fertility drugs and were unsuccessful. I had a radical Hysterectomy in 2007. Last year I had to have my appendix removed (emergency surgery) because of appendicitis and appendic endometriosis. I feel so much better since the H surgery but sad about no kids, although, my husband has been awesome. And the only thing I would change would be going to the specialist sooner.

Use a gratitude journal, it helps so much! We all have plenty to be thankful for…it changed my life after my surgery! Thank you all for sharing your stories! So glad I found you and this site! Xxoo

Kathy
Ohio
10-23-11

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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4 comments

  1. Jen

    My daughter was diagnosed at 15 with endometriosis…I found an amazing gyn @ Children’s hospital in Boston who told us that periods that disrupt your life are NOT normal…women have been led to believe to put up with pain, diarrhea, vomiting, fainting with their periods and it should not happen! I am so grateful I was persistent and found someone who would listen and “fix” her! Glad you found treatment sorry it was delayed…But as a side note…I was adopted…maybe that’s a option for you!?!?! In my opinion it’s one of the most unselfish, beautiful, loving acts a person can commit.

  2. stefanie day

    Thanks for sharing your story. I have it too. Lucky for me I did get to have one child. Adoption is a wonderful thing. We’re doing it to have our second child. Hoping to have Zoe Adele in our family soon! Keep fighting like girl!

  3. LaQuanda

    Thanks Kathy for sharing your story . I havebattle this chronic-horrible disease for 15 hears now. I too am unfortunate to conceive but I’m grasping the concept that its OK. Adoption is an option when I feel I’m ready to take on that role. I encourage you to stay strong and TRUST GOD that things WILL get better. Please email me I would love to chat more with you. Quanda410@yahoo.com

  4. kayleigh

    Hello Kathy,

    My name is Kayleigh. I was reading your story and noticed you had mentioned an Akron gyno.
    I live in the Parma area, which is not far from there, and I believe that I am suffering from this disease.
    Would you please be so kind to disclose this doctors name. It would be greatly appericiated! Thank you.

    Kayleigh

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