Friday, April 26, 2019
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Tag Archives: kidney transplant

Jessica’s Story (Cystinosis)

Jessica's Story (Nephropathic Cystinosis, Kidney Transplant)

When I was 22 months old, my parents were in the middle of a fight to find out what was wrong with their daughter. My mom (my fight-like-a-girl role model!) visited doctor after doctor and endured multiple misdiagnosis’ before finally hearing the word “cystinosis”. When she and my dad looked …

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