Hello, my name is Andi. I was very recently diagnosed with Chiari Malformation. I’m a rough and tumble girl, along with my 3 sisters. I’ve always been the “sick” twin between my twin sister and I. When we were born, I decided to breech last second and forced a C-section. The …
Read More »Antoinette’s Fight Like a Girl Story (Uterine Cancer)
In May I posted on here that I was diagnosed with uterine cancer. I had my surgery on July 14 and was diagnosed with stage 1A grade two. I will be having radiation treatment as a preventive measure, but it has been caught in the earliest stages. I developed complications …
Read More »Wanda’s Story (Kidney Cancer)
Hello, My name is Wanda Hurley. I live in Crisfield, MD with my husband and three kids. Ii was diagnosed on February 28, 2014. I started chemo on March 1, 2014, and my last day of chemo is September 15, 2014. I’ve had it rough but i’ll never give up. I …
Read More »Laura’s Story (EDS)
My story starts from being a child really, I was always very active, I danced, did gymnastics, fell, walked, went on long bike rides, and what not. I always complained it really hurt me and it took at least two full days of rest for me to recover after a …
Read More »Lori’s Story (Ovarian Cancer)
I was diagnosed with 3b ovarian cancer and 1b uterine cancer in January 2004 at the age of 32. After almost a year of pain and a very heavy period for long extended lengths, I found out what was wrong. I had been trying to get my GYN to listen …
Read More »Matthew’s Story (MCTD)
I want the world to know that MEN get these diseases too. I first notice I wasn’t well in June 2012, then I was diagnosed on December 22, 2012 with an autoimmune disorder, and was finally told I had MCTD in July of 2013 at the age of 23. It …
Read More »Elizabeth’s Story (Epilepsy)
Hi, I don’t really think my life is a story to tell because there are a lot of people who have it worse then me but I’ll tell mine just in case it can help someone else out. Back in 1994 (I was eight) my parents, three sisters, and I …
Read More »Delana’s Story (Melanoma)
The day before my 32nd birthday I went and had a mole removed. I wasn’t concerned at all, I just got tired of it itching on that one spot of your back that you can barely reach. The next week I got the call. It was cancer and I needed …
Read More »Misty’s Story (Chiari Malformation)
My Struggle with Arnold Chiari Malformation: The Full Story of How I Fight Like a Girl Hi!! My name is Misty Shay and I am the face of Arnold Chiari Malformation (ACM) Type 1. What is Arnold Chiari? Well at the Chiari Institute in Great Neck, New York it is …
Read More »Mandi’s Story (RA)
I was first diagnosed with Rheumatoid arthritis (RA) ten years ago. As the years passed I was also told I had lupus, then Sjögren’s syndrome, then neuropathy raynaud’s, and a few others. Then was diagnosed with basal cell carcinoma. It seems that every time I was attending the hospital I was …
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