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Sabina’s Story (Rheumatoid Arthritis)

Sabina's Story RA LRMy name is Sabina and I was diagnosed with rheumatoid arthritis when I was 12, almost 13 years old. It has been about 17 years now. My journey has been very interesting, funny, full of life, painful sometimes (okay very often), and very eventful. It would be nice if I didn’t have RA but I wouldn’t want any other illness in exchange! In the course of my whole RA journey, with God’s help and a lot of support from my family, I managed to do quite a lot with my life. 🙂 Somethings ordinary people only plan on. No, I’m not on steroids they somehow never suited me. Nowadays my activities include Wushu (kickboxing training) and Tai Chi.

As for one of the FLAGC quotes, “Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure.” I could not agree more.

I’ll be writing several stories, stories of what helped me manage my pain, what didn’t, alternate medicine, what I found was helpful to me, things that caused emotional pain, stress that aggravated it, stress that didn’t, foods that I was advised to eat (or not to eat), and all the nice things that happened on my way here. The reason I’m writing today is because I’m scheduled for chemo for my RA this week and I really want other people diagnosed with RA to know that is another option for slowing/stopping the rheumatoid arthritis progression. I wonder how many of you actually know that exists? I didn’t until I got it about four years back. It’s supposed to put rheumatoid arthritis  into remission and if and when it works it can make you feel very good! It’s called Rituximab (trade names Rituxan and MabThera) or you can just call it “Mab.”

So, to all people with RA: First, I know you’re tired of hearing this over and over but keep moving! Second, smile (though at times it will be difficult to) and third, you should know that you can make it one of the best things that happen to you. I want to share my stories and I hope I can inspire you to push your limits and live. Just live! That’s the best anyone can do. 🙂

P.S. I hope to take pictures of my chemo and post and share them with you guys because I believe we can fight this.

Love and Hope

Sabina
Pakistan
3-20-2012

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. Dear All,
    My story was published in FLAGC ( 22nd Nov’13) as “Sabina’s fight like a girl Story” (thank you FLAGC). I have multiple useful updates including LIVER FAILURE, CHEMO, hand tendon SURGERY and musco-skeletal concerns and things that seem to HELP so I’ve started a blog about it in the hope that it may benefit someone else. It’s about a journey through 20 years of rheumatoid and living life with an aim to coach others through it. It’s called Sabina’s diaries, the link is as follows:

    http://sabinadiaries.wordpress.com/

    I hope this helps. you can choose through the chapters of my life (iin case that chapter isn’t published online yet) so far to ask “how to”and what helped cope with it. I would love to help someone in time, Timely physio or “what not to do” helps reduce damage.

    Chapters:
    1. The Start – The 200 Year Old Tree 1993
    2. The Discovery – Doctors And Their Reactions 1993 Onwards
    3. The Struggle – I Set Out To Find Myself Among Mountains & Solitude While Simultaneously Becoming An Engineer (1999 – 2002)
    4. The Lowest Lows – Yet The Refusal To Give Up Running (2002-2004)
    5. The Adamant Phase – Survival On Willpower (2004-2005)
    6. The Immunosuppressant Discovery!
    7. The Fight Against Acceptance – The Start Of My Migraines,
    8. The First Biological Therapy – Chemo with Mabthera (Rituximab) (2007)
    9. The Acceptance – My Talk With My RAD/RA We Are One, Me An’ You (2009)
    10. The Lifesaver- Kung Fu Wushu (2011-2012)
    11. The Second Biological therapy – Patient Counseling, Reacting To Medication, Migraines, Mabthera, Final Exams And Pushing Through It All
    12. The Acute Liver Failure & Medical Malfunction Phase– Along With Another Another Graduation (Middle And End Of 2012)
    13. The Fight Like A Girl Club Inspiration And Story Publication (2013)
    14. The Hiatus From All Medication, Physicians And Their Fears (2013 -2014)
    15. The Surgery – Boutonniere’s Finger Surgery And Metacarpal Phalangeal Tendon Repair Hand Surgery (2014)
    16. The Emotional Struggle To Remain Sabina – The Start Of This Blog (A Few Weeks From Surgery)
    17. The rest is still unwritten and I will keep adding chapters as we go along. Some of them might be about general everyday life so I hope you enjoy the read 🙂

    I will write into flagc about my liver failure and chemo and metacarpal phalangeal (hand tendon) surgery. I’ve been taking pictures all along to write in to and for you.

    Love and Power to you all. Hang in there.

    Note:
    Thank you flagc for this platform where we can share and try to help each other and help our loved ones cope.

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