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Saartjie’s Story (Endometriosis)

Saartjie's Story (Endometriosis) So I never knew that I had this disease. I always had the worst pain when I got my period but I just thought it was normal. I’m 25 years old and I decided it was time to go for my first gyno checkup. I thought everything was normal and then we saw two big cysts. A month later they grew twice in size.

The gyno booked me for a laparoscopy. As soon as the operation was done there the diagnoses was the big endometriosis. I cried for days. Being told it was stage 4, all my tubes were blocked, and that I have a 1 in 5 % chance of having a baby was hard. My whole world turned upside down. Why me? Why was there never any signs? Why did I wait so long ?

Now I’m on Visanne treatment for six months and I’m sick every day. I am also waiting too see a specialist in November. I heard about IVF and I’m praying that I’ll be able to do it.

Is there anyone with stage 4 endo that got pregnant with IVF?

Saartjie
South Africa
Submitted 08/29/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. Hi all just an update on my story. Went for ivf got diagnosed with diabetes type 2 also.but fell pregnant with twins.30 weeks later my water broke my son was born healthy at1.4kg but i lost my little girl she had no lungs. Stayed in hospital 2 months and whent home with my boy only to discover he has hershes sprung disease 1 in 5000 babies gets this rare disease.sometime in your pregnancy your babies intestine does not develop ganglion cells which inhibits them from passing a stool.anyway baby got a operation and he now can live a healthy life. I just sometimes want to blame my endo for everything. Still have bad periods,depression a big horrible thing and endo so bad no more babies. But fellow endo sisters don’t give up weve been through hell ad back and still standing this disease wont get us down

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