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Maryam’s Story (Lupus)

Purple RibbonHello, my name is Maryam. I am almost 16 years old. It all started when I was 13 years old. The rash was the first sign. It was creepy, but I didn’t pay much attention to it. But it grew bigger, and suddenly it was also on my face. I went to a clinic, and they said that I had an allergic reaction to strawberries. After that, it went away for a while.

Then the pain began. The first 3 months, no one knew that I even felt any kind of pain, but after another 3 months, I began walking in a weird way. For 4 another months, people kept telling me that maybe I was playing too hard at school or not resting enough. 10 months, and I didn’t see any doctors. Only one doctor, and she said that I might need to just rest, and it didn’t work. When I finished a year in pain, I felt that it was something really serious. So I told my parents that there was something wrong with me. We went to all kinds of doctors, and they all said that there was nothing wrong with me. A few of them said that it was psychological illness, so my parents took me to a shrink. The shrink cleared me and said that I have normal brain activity (she said that I am also above average) which made my parents think that the doctors were wrong. Basically for another 6 months, I was misdiagnosed and treated wrong, so it became more aggressive on my body. I went to this doctor for painkillers, and he told me to go to another doctor. So we immediately went there. She tried to solve my case for 2 and a half months. Finally, she did, and I started the treatment, and now I feel much better.

The hardest part was when I lost few of my friends, and my family thought that I was crazy and started treating me differently. The hair loss was tough, and the gaining weight part affected me really badly. The worst thing is that whenever you want to do something, people say no because you are sick. I didn’t need a reminder. If I wanted to be reminded, I would just take a look at the mirror or at the 19 pills I take per day. It was hard at the beginning, but I am fighting like a wild girl who only knows how to fight.

Maryam
Bahrain
Submitted 01/04/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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