Finally getting a diagnosis. I started my period in 8th grade at age 13. It did its thing, then a couple of months later, I got my second one. From age 13 to now, age 31, my periods were never consistent. My weight fluctuated in high school between 150-180 lbs. I talked to my doctor about it, and he told me that my periods would eventually regulate themselves. I was on and off birth control. Pills made me super moody, I ended up being allergic to the patch’s adhesive, and the doc was afraid that Depo would cause me to hemorrhage. I ended up using the NuvaRing when I went on birth control.
But even with birth control, my periods were still irregular. When I was 21, my dad passed away from cancer, and I didn’t get a cycle for 2 years. I talked to doctors and was blown off for being “emotionally stressed.” Their solution was Provera, which I didn’t take because they did no testing. I gave up talking to them about it and went from 150 pounds to 250 pounds within 2 years.
When I got married in 2012, I went to a fertility specialist, and they did a plethora of testing. In May of 2012, I was FINALLY diagnosed with PCOS. I started infertility treatments with the specialist, but I ended up getting frustrated and depressed. I took 2 years away from it and just didn’t deal with any part of my PCOS.
In 2015, I restarted seeing a specialist–a different one that I like much better! I came back positive for HPV strand 16 and ended up with having a LEEP procedure done, along with a bunch of tests. I took Provera monthly, along with Femara–a drug that’s similar to Clomid, but its primary use is for breast cancer prevention in the opposite breast.
After a year of medication adjustments, ultrasounds, labs and seeing a weight loss specialist for 4 months, I got pregnant in November 2016. A positive test was taken in December 2016.
Don’t let doctors tell you there isn’t anything wrong with you when you don’t feel right. I may never get rid of PCOS, but I’ve learned how to control it and not let it control me.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
Thank you for sharing your story, Lorelee! It gives me hope that what the doctors say isn’t always the reality of my future. Kudos for you for not giving up, and congrats on your pregnancy. Way to Fight Like a Girl!
(PCOS) I’m going though the same thing now. I’ve had a total of three DNC’s, don’t have children, started my cycle at the age of 9. It’s very hard to deal with and I could tell I was starting to get depressed. My new doctor told me I have PCOS. I’m taking Metformin for it and it makes me sick, but just by reading about your story gives me hope that one day I can start a family as well. Thanks for your story Lorelee!