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Lily’s Story (Ovarian Cancer, Undiagnosed)

Teal RibbonThis is an ask for help. Since January 2015, I have felt so extremely exhausted. I was working 40 hours a week and developed an ear infection. I received antibiotics and codeine for the pain. Every 2 weeks since the infection came and went, I have been going back to my doctor’s, complaining I still do not feel well.

My body aches all over, and I have been so tired. I’ve had four weeks off work altogether, struggling to keep up a social life. In February/March 2015, my doctor told me she thinks I have CFS/ME, brought on by the ear infection. I was not convinced.

In July, I had a 22 day long period which was very unusual, as it usually lasts six days. I have been having pain during and occasional bleeding after sex. Every morning, I wake with what feels like extreme hunger pains and discomfort in my left hand side. The pain is not unbearable, but my side area constantly feels full and very uncomfortable!!

When having the long period, I visited my doctor, who suggested it was endometriosis, and I am going to the hospital for a scan tomorrow. I asked if she thinks it could be ovarian cancer, as the symptoms point towards this, but she dismissed me and said I was too young for that (I’m 18 years old).

Having read about the teenage cancer trust and that you should be persistent if you do not feel right, I was just wondering if anyone could suggest anything to me? Am I worrying too much or should I tell all the people that think I’m over exaggerating that something else could be going on?

England, UK
Submitted 09/28/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. Shannon ovalle

    No I don’t think you’re ur worrying to much you should definitely get test ran this time last year my 14 yr old daughter had a 3 month period extreme cramps pain in her ribs and her stomach was bloated I took her to one hospital and they didn’t even run test just said she need to use the restroom. So after a week with no change I took her somewhere else and they sent her for an ultrasound and found a five inch mass on her right ovaries after having it removed and sent off to be tested it came back as being cancer it was called juvenile granulosa cell tumor so with that being said you are not to young and I would demand a test also just to let you know after chemo she is all clear and cancer free so good luck I hope this helps and hope all is okay

    • Lily

      I’m so happy to hear your daughter is free from the nasty disease and thank you for your reply. I had my pelvic ultrasound and tramsvaginal one too, the next day the doctor told me the results said ‘very prominent ovaries with multiple follicles’, but that she doesn’t know what this meant!! Maybe polysistic ovaries she thought, so I asked her to refer me to a gynaecologist which she has done, but will take months to get an appointment through. My family are sick of me complaining, I just want to know if there is anything more sincere going on, than some funny periods!

  2. Naiema

    I just turned 23 and all of a sudden have long 22 day periods and really bad cramping on my right side. I want to think it’s gas but I’m scared to think it isn’t. The long periods that just started this month is weird to. I started reading into ovarian cancer but I thought it more or less happens in women 45 and older

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