Wednesday, September 28, 2022
Home / Power Stories / Lena’s Story (PCOS)

Lena’s Story (PCOS)

Lena's Story PCOSI got my first period, aged 11. It was incredibly painful. I literally couldn’t move. Around the same time, I decided to become a vegetarian. My parents didn’t support my decision, of course, so this resulted in me following a terrible diet for about 2 years. I basically lived on cereal while training in swimming 3 times per week. At some point, my BMI dropped significantly, and my doctor told me I was underweight.

Within a few months, I stopped having my period, was covered in acne and faced problems with dandruff. I went to see a dermatologist, endocrinologist and gynecologist. They ran a couple of blood tests and ultrasounds, discovering I had alleviated DHEAS levels and ovaries full of cysts–all part of a syndrome called PCOS. I have been on birth control ever since.

Problem solved? Not really… First of all, my symptoms didn’t disappear, they just lessened. Secondly, every now and then, as my body adjusts to the dosage, I start puking, feeling bloated or am extra sensitive to smell, not to mention my depression because of the skin condition I have to deal with. I don’t think anybody, except for my fellow cystas, understands what its like to live with a disease that cannot be cured. There are days I wish I was dead. However, my friends never let me lose hope, and I am eternally grateful for that. It is my b-day in about 2 weeks, and I am seeing a nutritionist in order to start a fertility diet. I also decided to give phytotheraphy a shot next year. Maybe one day, I’ll manage to treat my symptoms without synthetic drugs.


Submitted 02/07/2016

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

Check Also


Katherine’s Story (POTS, PCOS, EDS, ATM mutation and grief)

Before even entering the 9th grade, I had already seen at least 5 different specialists …


  1. Brigitte Estelle Gaudreault

    Bonjour Lena,

    Well first let me say …
    … Hello pretty one !!
    Lena, you think you are not getting enough information on anything that you need to understand how to cope with the changes in your life , you came to the best place for friends , love, information and support from a group of people who are inspiring and capable of sharing their strength and how they keep fighting like a girl, this club has full of inspiring fighters!

    Never give up , Never surrender you might have a disease but it certainly does not have you ! ♡♡♡
    For your parents, forgive them for their knowledge of not understanding wanting to eat better . My children has.

    Beautiful Lena, concentrate on going forward, you write so well, you are just full of life in you,
    first understand your problem , then put forward plan of action, and watch yourself grow into a young intelligent , strong educated mind that will grow smarter with knowledge not fear! Ok, so maybe with a
    pimple or two but you will have your smile, your love for life!

    I, thank your friends for their encouragement, love that they have for you ! Now show yourself that you have
    enough love and trust for … …you!

    ☆☆☆ Happy birthday Lena, from Canada !! ☆☆☆

    With love from Québec, Canada
    Brigitte Estelle xxx

    My birthday gift to you…

    love ya !!

    • Lena

      Thank u sooo much. It is truly inspiring to know I am not alone. I wish u not just a beautiful day, but a beautiful life! I”ll definitely check out your B-day present to me 🙂 Love from Zagreb, Lena

      • Brigitte Estelle Gaudreault

        Hi Lena,
        It was my pleasure !!
        I wrote a story about my sister in the section of Non Hodgkins Lymphoma section under the name Brigitte Estelle ……….. for my sister Diane Gaudreault, you are welcome to join us and celebrate hope and love !!

        Nothing good comes without patience, hard, honest work ! keep in contact.

        ♥♥♥ HAPPY VALENTINE! ♡♡♡
        With love from Quèbec, Canada
        Brigitte Estelle

  2. Brigitte Estelle Gaudreault

    Focus on a solution.

    “There is a great difference between worry and concern. A worried person sees a problem, and a concerned person solves a problem !

    Bonne Fête Lena !
    Brigitte Estelle , I shall pray for you !

Leave a Reply

Your email address will not be published. Required fields are marked *