I was diagnosed with lupus a week before Christmas Eve. I’d had psoriasis all my life – until 2006. My skin had cleared up everywhere, except my forehead. Anyway, in Summer 2010, I had high blood pressure so last August I went to the doctor. He said it wasn’t high so he ran some tests on me and told me to come back the next month. Well, I went back in September and the doctor said that my cholesterol and ANA were high so he told me to come back in 3 months to test for lupus and it came back positive on 12/17/10. Now, the mini symptoms are here and my blood pressure goes up every Summer but it is normal when I go to the doctor.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.
I too have Lupus-SLE. Was diagnosed in 1996. It took doctors over 20 years to diagnose me, which means my entire childhood I was labled someone who wanted “attention.” I eventually began getting sick enough where it could not be ignored, and old enough to take it into my own hands. My best advice to you is to be your own advicate, always. Be proactive in your health care. If you are not happy with any of your health care providers in any way shape or form move on ! Seek support groups. Read, research, learn, ask questions, and lots of them. Never, ever let any one make you feel like you are being a pest, this is your health, your life. When given any medication/treatment ask about, research it. Weigh the pros and cons. You have a say. And most important, Lupus is NOT a death sentence it is a life change.
i also diagnosed to have a lupus at year 2007… but God is good He never let that disease affect my faith in Him… Now i believe im free from that lupus and all associating in it… the key to be healed are pray, ask forgiveness, believe and trust.Smile!!! God never gave us problems that we cant survive… You just need to ask, call and knock as what Matthew 7:7 says;Ask and you will received. Search, and you will find. Knock and the door will be opened for you.God is true to His promises. just believe and trust with all your heart… GOD BLESS YOU…
i went to the hospital Nov. 14, 2011 because i couldnt breathe! many tests were ran & they discovered pulmonary embolisms (blood clots) in my lungs, i was admitted within my 15 day stay i was diagnosed with Lupus after many test were ran including a kidney biopsy! i didnt ever think id be the one with Lupus of all things! come to find out my paternal gma has lupus (not biological) & so through out all my dr appointments, test, other diagnosis’ have been made … my grandfather has given me lots of insight on this disease and has helped calm me on many parts of my coping!
Its very late and seems the only time I can log online. I have some labs in the morning and its NPO as of 1.75 hrs aho. Naturally Im awake and would love to eat something or have a glass of juice or milk . I have barely read anyones blog. However I would like to come back to it. I was diagnosed faily quick compared to most. I guess back int the day they thought folks were seeking attention. Since I worked 80 hours, had children an dsingle ,also volunteering the emrg rm doc could never reach me (before the cell phones) My diagnosis was one a a few thought he had. Well, I had a rather severe bikecycle wreck after working 19 hours I had missed my routine daily run at lunch and thought I need to get one run in so off I went, found my childs bike which I chose to ride home (had no helmet). Yep I lnded first on my head in the front. I was told SLE is often predsiposed and a trigger can be a severe emotional or physical trauma. I did return to my day job in 2 weeks (if you only knew how banged up I was you’d be shocked) The 5th week I also returned to my night/wknd job. I had no idea yet but from Aug to Dec I was really getting in rough shape. My girl would make a large handle for me to hold my hair/tooth brush. Took a couple hrs to get dressed for work and symptons would be so odd and all over. By dec the guys at work talked me into going to see a dr. I had such painful swollen joints and couldn’t hold the wheel good to back out of parking so I went. A long story short and it is long due to all the things that had happen in 2 wks that made drs think i had several things. I was told I had hypertention. I thought impossible its always low. They wanted me to go on steroids. I knew I would gain weight and I was about 103. In time I knew I had a student coming from Brussells and I needed to function. I took the Rx and gained in 4 mos 64lbs, but felt great again, continued to work 2 jobs, held chair in 3 diff orgs and host srtudent and cadets on wknd. even took a foster child too. Yep super women. Well, the Rx is a good/bad drug.
I WAS DIAGNOSE WITH LUPUS 10 YRS AGO. I WAS SUN TANNING
AND ONE DAY STARTING BREAKING OUT IN HEAT BUMPS
THEY DID’NT GO AWAY. SO DECIDED TO GO TO DR’S THEY RAN SOME TEST
AND WAS DIAGNOSED. MAKE A LONG STORY SHORT I STIL BREAK OUT IN HIVES
EVERYDAY. NO DR HAS STOP THEM OR FOUND A CURE.
EVERYDAY IS A CHALLENGE FOR ME BECAUSE I HAVE HIVES CONSTANTLY
THEY ITCH AND OFTEN ON MY FACE. PRAY THAT ONE DAY THEY WILL STOP.
THIS IS MY FIGHT WITH LUPUS!
Hi, I was diagnosed with Lupus last year in May 2011. My doctor told me it was rare for someone at my age to not have been diagnosed before. As I learn more about my disease I am realizing I was treating my symptoms as other illnesses over the years when they were in fact signs of Lupus. I missed a lot of work over the last 5 to 7 years. I always got the “office bug” and was sicker longer than anyone. My recovery seemed to be one to two days longer than others. I had sweling and rashes and severe muscle pain. I would wake up sick at night throwing up and with a fever regularly. I just thought I was over worked, too fat or depressed. I worked two and three jobs at a time to make ends meet. I had got a divorce in 2008 and had to work to survive. I finally realized I had to make a job change to be happy. I knew I was not getting better physically and the people I worked for had no compassion and were not going to support me. I think they thought I was faking. I also had the responsibility of my ill mother. I was the one and still am at times the one that takes care of everyone first. I was a daughter, wife and mother all my life. Now I am ME and I am sick with Lupus SLE and alone. The kids are grown, the husband is now an ex and my Mom is having to seek help from others in the family. I work for a great company now but at times I feel like I am letting them down but I try my best. I have a group of good friends that understand my illness. I have learned to say NO and not feel guilty about it. I spend so much time in and out of doctors and trying new medicine or different doses. i have about four good hours a day and the nights are very hard for me. I can feel every muscle in my body hurting. There are mornings I can barely walk and it is hard to dress myself. I pace myself. I have yet to make it to work on time. I get angry and depressed but I keep going. i refuse to curl up and die. My doctor told me with Lupus you either choose to live or choose to die. It depends on how you maintenance your body. Well I choose to Live.