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Kimberly’s Story (Carcinoid Cancer)

Kimberly's Story (Carcinoid Cancer)Hi my name is Kimberly Smith, in the year of 2009 I had been sick for sometime.I had a gastroenterologist diagnose me with IBS and prescribed me medications. I was getting sicker and the medications were no longer working. I was losing weight, had bad painful diarrhea attacks suddenly, and I started seeing another doctor whom did not seem to care that I was running fevers, loosing weight, and having diarrhea very bad.

After two visits to this doctor telling him the same symptoms he would say it’s a sinus infection, take this antibiotic. On the next visit say it’s an abscess tooth and he’d say take this antibiotic. Well  on the third visit I was furious. I said, “Look doctor no one knows my body better than I do, I feel like I am going to fall over dead.” So finally he sent me to a gastroenterologist. He immediately judged me saying that he did not think that’s where the problem was, and I needed to see a therapist. I said, “Okay, I will. But explain to me the fevers, the diarrhea, and weigh loss. He said, “Oh yeah, we will do a colonoscopy.” On May 7, 2009 he did a colonoscopy and he said he found a polyp and he removed it.

I went home, I was in so much pain. I had to go back to ER because he had perforated my bowel when he removed what he said was a polyp. I had emergency surgery and had my stomach clamped together in hospital for a week. When my results came back they found I had carcinoid cancer not a polyp. I had to be cut open again six weeks later for right hemicolectomy to have my small intestines and lymph nodes removed because it had spread there in four of them.

I am still battling four years later, loosing blood and swelling because the carcinoid can go to the heart and cause ascites, swelling the liver. I am in constant pain and still fighting it. Recently I had a roommate getting my mail and she was not giving it to me. It caused me to not go to a review for my disability and now I’m battling that. I hope things will get better. Thanks for reading my story.

Kimberly
North Carolina
Submitted 04/07/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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7 comments

  1. Prayer, prayer and more prayer Kimberly!!

  2. Hi Kimberly… I saw your link on healthcare.gov. Thanks for sharing your story…. I’m including you in on my prayers. God Bless you and keep you!

  3. I’m so glad you didn’t give up or give in!! You fought for yourself and continue doing so. Your strength and courage is astonishing!! I will pray for God to bring you continued strength to get you to where you need to be! Always Fight Like A Girl my friend♡

  4. Hi Kimberly,

    I too am from NC and have been suffering from “textbook” carcinoid symptoms since 2008 . I am anxiously awaiting some recent test results from Wren laboratories in Connecticut. The roller coaster of misdiagnoses and declining health is something I also am very familiar with. I will keep you in my prayers. When I am diagnosed maybe we can help each other? Until then, God bless you with peace and comfort.

    • Hi Lori thank you.I had to be persistent and still am i will be having a blood transfusion Thursday a 6 hour procedure.I done my own research as when the Gastronologist did do my Colonoscopy he thought the cancer was a polyh and removed it resulting in preforating my bowel and my stomach cut open and 7 days in the hospital before he came and told me he had the biopsy and out of his 15 years experience he had never seen it meaning Carcinoid.Had he biopsied the so called polyh i could have been saved the bowel preforation.I immediatly got on the internet and started doing my own reseach..Its been a fight surviving all the medical mistakes and surgeries.But i am still fighting and will be glad to help you all you have to do is ask.I will tell you who to avoid by my own experiences as not many doctors know anything about Carcinoid.God Bless You too i will pray and please stay strong and keep fighting like me…

  5. Thank you all very much and thanks for the prayers as well because God has me here for a reason after almost dying 3xs…Sincerely Kimberly Dawn Cain Smith

  6. Tommy Thibault

    Keep fighting kim. Never give up. Youll always be in my prayers and in my heart. Love, Tommy

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