My name is Kathie, and I am 57-years-old. I am a mother, a grandmother, a daughter, a sister, and an aunt. I am also living with an incurable disease called autosomal dominant polycystic kidney disease (ADPKD).
When I was 49 I was blindsided by the diagnosis. This is what I have learned by living with it. Normal kidneys are the size of a fist, mine are the size of a football. Having 2 footballs in your body where 2 fists belong means a lot of moving around of other organs, especially the colon.
Fun times there, let me tell you! Yes, I know I look pregnant; you don’t have to tell me, and pain is my constant companion. I don’t want it around, but it is stubborn and will not go away. My urine can be anywhere from yellow to red and every variation in between, but I know when the urine is red it means I’m in trouble…and it hurts!
I have also learned that even though I have no control over this, I do have control over my life. I can sit and worry about having to go on dialysis and an eventual kidney transplant, or I can take it one day at a time and LIVE NOW!
I am in the fight of my life, and I am fighting like a girl!!!
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.